Sat, 20 Jan 2018. Issue #93.
In this issue: Up close and personal with Chronic Fatigue Syndrome in Jennifer Brea’s film, “Unrest”. Designing a new menstrual cup for disabled women out of necessity. When doctors should be on your side, but aren’t. When everyone seems to be adulting, but not you. The difficult question of disability and ability to work. No matter how you’re feeling, give it all you’ve got according to your capacity for today. Why it’s important not to hide your pain and feelings. When chronic illness feels this bad every day, but people have no clue. Some reflections on life, shared on The Invisible F’s “Overcomers” series. Turning to yoga to manage chronic pain.
“At one point, she could only film one day a month. From her bed, she started reaching out to other patients on online message boards to interview them”: https://t.co/Ccwke2aRtA @WSJ @jenbrea #MECFS #chronicfatigue #spoonie #chronicillness #film
— A Chronic Voice (@AChVoice) January 13, 2018
“I didn’t want to send more tampons and pads into the landfill, but I had to prioritize my own body over the planet. That is not a fun choice to make”: https://t.co/SvFJSCxvZ7 #disability #EDS #womenshealth #menstrualcup #chronicillness
— A Chronic Voice (@AChVoice) January 15, 2018
“Having any chronic condition is a constant battle, so why are we also having to battle those who are supposed to be on our side?”: https://t.co/J4b7Li8aEx @Fibro_fantastic #doctors #healthcare #spoonieproblems #chronicillness #humanity
— A Chronic Voice (@AChVoice) January 17, 2018
[New Post] "Everyone seems to be #adulting, while it feels like you’re just some helpless kid": https://t.co/DfIWJIZazR #spoonie #chronicillness #selfworth #selfesteem
— A Chronic Voice (@AChVoice) January 15, 2018
“perhaps the most significant question, and most commonly asked to #chronicpain patients, is that of their ability to #work”: https://t.co/dj764eqeYB @itsxofaith #career #spoonieproblems #chronicillness
— A Chronic Voice (@AChVoice) January 13, 2018
No matter how you’re feeling, just give it all you’ve got, according to your daily capacity. There’s #nothingtolose 🙂 https://t.co/cOKemLFBHA #QOTD #spoonie #motivation #chroniclife pic.twitter.com/R4mPFcWuPw
— A Chronic Voice (@AChVoice) January 17, 2018
“Being #honest & talking about how you really feel doesn’t just make you feel better, it actually helps to spread the word about #chronicillnesses / #invisibleillnesses to people that don’t know anything about it”: https://t.co/AbRYI53SA4 @LJHunter0110 #spoonie #awareness
— A Chronic Voice (@AChVoice) January 13, 2018
“The doctor looks at me and asks why I didn’t come in sooner. I almost fell off the table. I always feel like I have the #flu…People have no idea what it feels like living with #chronicillness”: https://t.co/dhez8myYgN @lolabellaquin #spoonie #chroniclife #whenitrainsitpours
— A Chronic Voice (@AChVoice) January 18, 2018
[New Post] "I had the honour of sharing some thoughts, #lifelessons and goals with @AliApow, who runs a wonderful blog on overcoming #fibromyalgia and #depression": https://t.co/85bkPJVwxi #overcome #chronicillness
— A Chronic Voice (@AChVoice) January 18, 2018
“Because of my diagnoses, I’ve had to stop multiple activities that brought me joy – blacksmithing, horseback riding, lounging in the sun at the beach all day”: https://t.co/CAbCrbg6r5 @BeeContentYoga #spoonieproblems #chronicillness #chronicpain #yoga #painmanagement
— A Chronic Voice (@AChVoice) January 17, 2018
If you liked this article, sign up for our mailing list here so you don’t miss out on our latest posts!
