Sat, 10 Mar 2018. Issue #100.
In this issue: Jennifer Brea was a Ph.D. student at Harvard, when she was struck down by the mysterious Chronic Fatigue Syndrome. The need for disabilities to be normalised, especially for young people. A poll on how people with chronic pain cope with their careers. Phone anxiety is real. There are more than 100 autoimmune diseases, and they don’t have a unified look to them. Learning to practice self-love with an uncooperative body. The relief of having a supportive partner, when you’re constantly at war with your body. A safe space for spoonies to share their life stories on a monthly basis. How to live your imperfect live with chronic illness. Expecting the unexpected is the norm for those who live with chronic illnesses. What you need to know about fragrance and chemical sensitivities, especially in public places.
[New Post] “@jenbrea was a Ph.D. student at Harvard, when she was struck down by a mysterious illness. This is a #documentary…living with this nightmare of a disease called #MECFS”: https://t.co/KnrKlL7t6H @unrestfilm #chronicillness #chronicpain #society
— A Chronic Voice (@AChVoice) March 5, 2018
“I'm no longer hiding my #disabilities, because people need to be aware that #youngpeople get sick, too and it's okay. Disabilities need to be normalized, not hidden in the dark”: https://t.co/h1fgu3gMZ4 #invisibleillness #society #awareness
— A Chronic Voice (@AChVoice) March 3, 2018
If you with #chronicillness or #chronicpain, how do you cope with your #career? #polloftheday #spoonie
— A Chronic Voice (@AChVoice) March 3, 2018
“I feel embarrassed, sometimes, for being afraid of a #phonecall. I’m capable. Educated. Yet I feel like one who can’t stand up for herself when it’s needed most”: https://t.co/ewb1pBhHiq @TheMightySite #spoonieproblems #anxiety #chroniclife #mentalhealth
— A Chronic Voice (@AChVoice) March 2, 2018
“There are more than 100 identified #autoimmune diseases…though they all involve an #immunesystem that mistakenly attacks its own body, life with these conditions doesn’t always one have single ‘look’”: https://t.co/1Z8jA3cUFE @TheMightySite #chronicillness #awareness #spoonies
— A Chronic Voice (@AChVoice) March 4, 2018
“Hopefully, one day, I might actually develop the ‘#selflove’ I think my body should get. But for right now I’m just trying to live”: https://t.co/yXF1KlLcqX @TheMightySite #lupus #chroniclife #chronicpain #SpoonieProblems
— A Chronic Voice (@AChVoice) March 8, 2018
“It feels like I’m always fighting with my body, so it means the world that I don’t have to fight about it with my partner”: https://t.co/Nl2FFTNzrO @TheMightySite #caregiverd #chronicillness #chroniclife #relationships #spoonie
— A Chronic Voice (@AChVoice) March 6, 2018
"Regardless of how you’re feeling, I hope that this provides a #safespace for you to share your #lifestories. After all, it takes a #spoonie to understand one": https://t.co/SIN1qSUwCq #linkup #chronicillness
— A Chronic Voice (@AChVoice) March 8, 2018
“we have a fascination with #perfection. Instead of finding it, most people find disappointment, #anxiety, judgment and a face in the mirror that is not truly their own”: https://t.co/B2Y4Qa6ura @Unbrokensmile1 #selfbelief #selfcare #spoonie #mentalhealth
— A Chronic Voice (@AChVoice) March 5, 2018
“People who don’t experience #illness don’t realize how much illness can consume a person’s life and how much it can change their path”: https://t.co/YVBJKi9qGW @girlsgotguts #lifegoals #selfawareness #spoonie #chronicillness
— A Chronic Voice (@AChVoice) March 9, 2018
“Making spaces #accessible #scent-wise might sound strange, but #fragrance and chemical sensitivities probably affect more people than you realize”: https://t.co/ei3mYOT34r @hedonish #allergies #awareness
— A Chronic Voice (@AChVoice) March 8, 2018
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