Saturday, 05 2018. Issue #108.
In this issue: Why sleep isn’t a luxury, but a necessity. Goodnight to Archer, my blue parrotlet 🙁 Downsizing your living space because of poor health requires all of your coping skills. The May linkup party is out – amazing how time whizzes by! Being questioned from using a disability seat as a spoonie. How coping with chronic illness may seem ‘high maintenance’ to healthy people, but really isn’t. Fatigue due to Multiple Sclerosis is crushing, and there shouldn’t be a need to prove it to someone else. A thought that helps to calm me down when I’m feeling frazzled. You need to be your own biggest advocate, even if you have a great doctor. An interview with an ME/CFS sufferer – bad is bearable, but it’s often worse than that.
[Archives] "In modern #society, #sleep is often considered a luxury more than a necessity, but your brain isn’t loafing when you rest…your body undergoes maintenance and repair": https://t.co/8XGkLebjao #selfcare #chronicblogs #chronicpain
— A Chronic Voice (@AChVoice) May 3, 2018
Goodnight Archer. You were a curious and cheeky little brat that brought us so much joy. We are going to #missyou so much. ❤️ (Pictures are from him as a baby, up until he had a mate❤️): https://t.co/4MP32fJN02 #bluemonster #parrotlet #cutenessoverload #spoonie pic.twitter.com/cXE6QEhtQK
— A Chronic Voice (@AChVoice) April 28, 2018
“#Downsizing your living space because of poor health requires all of your coping skills. This is happening to me”: https://t.co/blz6g2UOFW #spoonie #chroniclife #grief #movinghouse
— A Chronic Voice (@AChVoice) April 29, 2018
“The older I get, the more I’m amazed at how time whizzes by. I even need to pause for awhile as I recount my age, as I can’t keep track anymore”: https://t.co/iO3kw59XD3 #linkup #maylinkup #spoonie #chronicpain #mentalhealth
— A Chronic Voice (@AChVoice) April 30, 2018
"Don’t expect people with #disabilities to prove they’re #disabled just to appease you, and refrain from judging others when you don’t know their medical requirements": https://t.co/of7nA3fxNs @TheMightySite #society #awareness #invisibleillness
— A Chronic Voice (@AChVoice) April 28, 2018
"These 'decisions' are often made out of necessity to manage your illness and be able to function as best you can": https://t.co/2WP9zHt3BC @TheMightySite #highmaintenance #spoonieproblems #awareness #chronicpain #painmanagement
— A Chronic Voice (@AChVoice) April 29, 2018
“But why do I need to prove to you that my #tired is the literal worst anyway? That #MS fatigue isn’t just tired, it’s crushing, soul-sucking #exhaustion that feels like failure at life”: https://t.co/ZWtSEMsVjs @tripping_onair #fatigue #spoonie
— A Chronic Voice (@AChVoice) May 3, 2018
Sometimes when I get all frazzled, this thought helps to calm me down. All I need to do is #focus on the task at hand fully, and let everything else go for now. Give the present moment space to #breathe, and the attention it requires: https://t.co/4okCAUuzb4 #mindfulness #spoonie pic.twitter.com/a5qg9pSBOV
— A Chronic Voice (@AChVoice) May 4, 2018
“When you do find a #doctor you trust, you still need to be your own biggest #advocate and use your voice”: https://t.co/syVUQYEz4B @nataliesparacio #spoonie #chronicillness #crohnsdisease
— A Chronic Voice (@AChVoice) May 1, 2018
“The best I can hope for is that it doesn’t get worse than bad. Bad is bearable. Unfortunately it’s often worse than bad, and sometimes it’s #unbearable”: https://t.co/kmnPpJoTKh @Not_Just_Tired @DavidBridger #mecfs #chronicfatiguesyndrome #spoonie #chronicpain
— A Chronic Voice (@AChVoice) April 28, 2018
“I ultimately realised, that to get better I had to stop fighting. It was the accumulation of years of fighting my own body and mind that had lead to my #breakdown”: https://t.co/SbC9W0wmp3 @JourneyFog #mentalhealth #acceptance #spoonie #selfawareness
— A Chronic Voice (@AChVoice) May 2, 2018
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