Saturday, 12 May 2018. Issue #109.
In this issue: Many spoonies manage to hide their pains really well, to the point where we can’t even identify each other! The importance of being your own biggest health advocate, and holding onto hope. Showing gratitude to our mothers, who never fail to show up despite feelings or circumstances. The unchargeable life of a spoonie, where our energy never gets fully replenished. The problem with the word ‘tired’ is its overly open taken. What is #MillionsMissing all about? A comic to show the difference between normal fatigue, and Chronic Fatigue Syndrome fatigue. Have you ever treated sleep as the precious gift that it is? The difficulty of explaining fatigue to others, because it affects us all in different ways. What happens when you survive trauma to the brain, but lose parts of your identity you took pride in?
[New Post] #GuestPost by a Friend Who Also Suffers from #ChronicPain – "We had all managed to conceal our conditions so well, that we couldn’t even identify ourselves amongst other #spoonies!": https://t.co/0dMtF0ojRD #chronicblogs #chronicillness
— A Chronic Voice (@AChVoice) May 6, 2018
“the most important thing for me has been becoming my own #health #advocate, keeping an open mind and holding onto the hope that I could get better”: https://t.co/mlTgMZTYtY @thedailymanic @febstarsblog #spoonie #chroniclife #chronicillness
— A Chronic Voice (@AChVoice) May 9, 2018
[New Post] "It is to wake up every morning and to #showup despite feelings or circumstances. This is tough, and #mothers do it without demanding accolades or favours in return": https://t.co/6dS6X4c5eL #spoonies #chronicillness #lifelessons
— A Chronic Voice (@AChVoice) May 9, 2018
“Though people with #chronicillness have a battery that doesn’t recharge no matter how long you leave it charging. We’re #unchargeable”: https://t.co/WPomvj3EHO @chronic_hopeful @Unchargeables #spoonieproblems #spoonies #chroniclife
— A Chronic Voice (@AChVoice) May 8, 2018
“The problem with the word ‘#tired’ is that, in many ways, it’s too relatable. To different people, it can mean different things”: https://t.co/u97G1fKNJI @TheMightySite #chronicfatigue #chronicillness #society #wordsmatter
— A Chronic Voice (@AChVoice) May 8, 2018
“And if you’re wondering why we use the hashtag #MillionsMissing – it’s pretty simple. These diseases make us disappear from our lives, and from yours”: https://t.co/XLlR8jijVE #mecfs #chronicfatiguesyndrome #pwme #spoonies
— A Chronic Voice (@AChVoice) May 7, 2018
“The #comic is all about how energy and exertion differ between the two women, and how their experience of meeting up for a coffee has a dramatic effect on Maddie and none on Nancy”: https://t.co/LBzaTmS9wy @lauras_pen #mecfs #chronicfatiguesyndrome #spoonies #MEAwarenessMonth
— A Chronic Voice (@AChVoice) May 5, 2018
When someone thoughtfully gives me a gift, I receive it enthusiastically…Most importantly, I’m #grateful for it. Then I asked myself, 'Have I ever treated #sleep as a gift?'": https://t.co/UB51VAPKGr #mentalhealth #painsomnia #chroniclife
— A Chronic Voice (@AChVoice) May 10, 2018
“One of the problems is that #fatigue affects everyone differently, and that can make it really hard to explain to others”: https://t.co/jXbeOF5y9V @dizzythedonkey #chronicfatigue #mecfs #chronicillness #spoonieproblems
— A Chronic Voice (@AChVoice) May 4, 2018
“While I won my struggle to #survive, much of my #identity—as a Stanford professor, a speaker and writer, an athlete, a mother and a wife—was gone”: https://t.co/FqwF7VuDJe @michelle_munt @TheftBook #stroke #braininjury #brain
— A Chronic Voice (@AChVoice) May 10, 2018
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