Friday, 27 July 2018. Issue #120.
In this issue: How humility gives me that little push to share about life with chronic illnesses, and why that’s important. Often just by being there with someone in unbearable pain, is the most important thing you can do. The constant assessments needed simply to live with chronic pain, and how that’s hard work. Your doctor should never dismiss your pain, and how to find the right healthcare practitioner to work with you. Why it’s important to be real and honest, with and about your pain. Travel blogging may seem like the worst option for someone with fibromyalgia, but here’s how she keeps her passion going. Your career and ability to work, is not the ultimate measure of your self-worth. The physical and mental agony of being undiagnosed, despite the match in symptoms. How telling others to ‘be brave’ or ‘be strong’ while they’re in pain can be demoralising. It takes an equal contribution from both the patient and the doctor to facilitate recovery.
[New Post] "This gives me that push I need to post; I am simultaneously voicing out the suppressed concerns or #struggles of many others out there, whether I know them personally or not": https://t.co/Mw3cdfboqX #chronicpain #mondayblogs #advocates #spoonies
— A Chronic Voice (@AChVoice) July 22, 2018
Sometimes all you need to do is #bethere. Oftentimes, it’s the most important thing you can do, especially when there’s nothing else to be done in the midst of unbearable pain: https://t.co/0NXbqxjhA7 @JourneyFog #spoonies #support #chronicpain #friendship pic.twitter.com/LX5KccJx7j
— A Chronic Voice (@AChVoice) July 22, 2018
"Suffering from #chronicpain or illness…is hard work. 1 reason for this is that we must constantly assess & evaluate if we’re managing our #health and our #relationships skillfully": https://t.co/kdcfi5tnfV @PsychToday #chronicillness #spoonieproblems
— A Chronic Voice (@AChVoice) July 23, 2018
“Your #doctor should not dismiss your pain. They need to be willing to experiment with possible solutions, or be willing to refer you to a pain specialist that could better fit that role”: https://t.co/L3tm7rXwni @chronicmom1 #chronicpain #chronicillness #spoonie
— A Chronic Voice (@AChVoice) July 26, 2018
“Her words awoke a concept within me…I desperately needed to start acknowledging, accepting, and embracing my pain in all its realness in order to heal and cope properly”: https://t.co/vufm63uAO3 @MigraineMantras #chronicpain #mentalhealth #invisibleillness #migraines #spoonies
— A Chronic Voice (@AChVoice) July 22, 2018
“For someone with #fibromyalgia, being a #travel #blogger seems like the worst profession…But traveling is my passion so succumbing to my health and not doing what I love anymore simply wasn’t an option for me”: https://t.co/eGVYUWAULl @Travel2recovery #spoonie #chroniclife
— A Chronic Voice (@AChVoice) July 22, 2018
“Additionally, being able to work is NOT the ultimate measure of a person’s worth. Frankly, I am much more impressed at how a person treats others than what kind of work they do”: https://t.co/9mwekcAEYO #selfworth #spoonies #society #career #chronicillness
— A Chronic Voice (@AChVoice) July 21, 2018
“Despite the odds, the identical #symptoms, I am negative for a diagnosis of #AnkylosingSpondylitis. This puts me back to square one, back to no diagnosis, back to unexplained pain”: https://t.co/qOeD6srzkx @BadMammyBlog #undiagnosed #chronicpain #spoonie
— A Chronic Voice (@AChVoice) July 22, 2018
[Archives] "We often tell ourselves or others to ‘be strong’ or to ‘be brave’. Instead of instilling #inspiration, these statements can sometimes provoke the opposite effect": https://t.co/cXxjEmgc1w #strength #motivation #chroniclife #spoonieproblems
— A Chronic Voice (@AChVoice) July 19, 2018
“It takes an equal contribution between both parties – the professional and the patient – to facilitate #recovery”: https://t.co/JXqMwGsD73 @nicomochiii #sucide #chronicpain #mentalhealth #chronicillness
— A Chronic Voice (@AChVoice) July 25, 2018
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