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out some new symptoms again. To be a person with chronic illness is to be an enigma. The need to deal with a constant stream of puzzles arises, mysteries that you either solve or live with. July presented some strange new symptoms for me. It started as tingles in my legs and feet when I got out of bed each morning, before the buzzing became a steadfast companion 24 hours a day.
I am blessed that I have such responsive doctors, who communicated with each other, and slotted me in for an earlier appointment. It’s most likely to be peripheral neuropathy issues from Sjögren’s Syndrome, which has left my nerves alone until now. They’re also testing for other possible causes just to be sure – diabetes, syphilis, HIV (I did say they wanted to be sure!). I’m waiting to do the nerve test but if nothing shows up, then the next step will be to stop my blood thinners, so that I can do a biopsy to check on the small fibre nerves. Do any of you suffer from nerve-related issues? If so, do you have tips or knowledge to share?
I’m not even sure what triggered it, but that shouldn’t be a surprise with chronic illnesses. While I did change my diet somewhat as suggested by my nutritional therapist, it wasn’t anything ‘hardcore’. Anyway, I’ve cut everything out again so I’m back to square one, with additional symptoms to deal with. Don’t you hate this cycle, especially when all you tried to do was help your body out? In Chinese we have this saying, “越帮越忙”, which means ‘the more you try to be helpful, the more problems you create’. Sometimes I don’t even feel like trying new remedies out for such reasons.
my life by expanding my scope of activities. I know I sound like a broken record every month, as I repeat my ‘new’ goals but end up procrastinating mostly :p I spend a huge chunk of my life doing blogging related activities. While I still do enjoy them and have no plans of stopping, I’d also like to re-introduce other activities back into my life again.
For one, I need to take the initiative to visit my friends and family a little more. I’d also like to spend more time with nature even though I live in an urban jungle, and to start doing some light swimming again. I’d like to read more, and on a wider variety of topics. I’d like to spend more time making home cooked meals, even though I don’t like to cook 😉 I’d like to watch more movies with my partner, and discover new TV series.
Anything and everything, as you can see! I guess what I mean is that I’d like to put on my curiosity cap again, in order to exercise and stimulate my brain in more ways than one. I believe that by doing so, it will contribute to a life that’s more wholesome, fulfilling and complete.
can be stimulating in the long run. In addition to the prompt above, this also means that I’d like to start differentiating my weekends from my weekdays. Because I’m home most of the time, the lines can get blurry. I have decided that I’d like to set work, blogging, and other computer-related activities aside during the weekends (apart from my newsletter which I send out every Sunday).
I’d like to be bored. To allow my mind to wander, in order to explore new trails and creative pathways. I realise that when I’m unable to access my laptop, phone, or some other stimulus, my brain starts to get restless. Then something magical happens after it goes beyond that stage. It begins to provide me with interesting new ideas for blog topics, or throws up thought-provoking questions. It reminds me of forgotten tasks, suggests healthy activities, and proposes some useful changes I can make in my life. I try to ‘take notes’ so that I don’t forget!
I am fortunate enough to remember a time where the internet and mobile data were rarities, so I do know clearly what the benefits to being bored are. Thus I’d like to set aside my weekends and just get bored, so that when Monday comes around again, I’ll be recharged, refreshed, a little smarter from a new venture hopefully, and also more productive!
my pet birds! I read two interesting articles on the sense of touch recently. One explores the other-than-physical aspects of touch, which goes beyond just sex. It examines the consequences of being isolated in prison, and the increase of loneliness in modern society. The other is not an accurate portrayal of all the different love languages, but since it said something nice about my primary love language, I’m inclined to like it a bit more 😉 Here it says:
“The easiest and most fun to love, seriously. I adore people who speak physical touch, because it is by far the simplest one to ‘replenish.’ There’s no planning, no money to spend, and no real exertion of effort or time.”
This is actually true, though! It can be quite ridiculous to the point where my mind knows clearly that affection or sex doesn’t always equate to love, yet I still feel loved with skin contact. I like to hug my partner and feel his body pressing against my heart (although he finds this ‘claustrophobic’ at times :p). And the easiest way to calm me down and reassure me, especially when I’m in pain, is simply to stroke my hair.
But anyway, I will continue to get my cuddles from wherever I can, which includes my cockatiel, Scorcher! He’s the cuddliest of them all, and the one that’s most bonded to me. I love to nuzzle his down feathers, and stroke his tiny little yellow head. He loves to perch on my shoulder and follow me around. He often sneaks into my room when I’m taking a nap, just so he can perch on my leg to snooze in unison. He’s content as long as he can be with me, which always reminds me to be grateful for all I have in life, too!
Nice to have a work buddy at home 🤣 . . . . . #achronicvoice #spoonie #spoonielife #spoonies #invisibleillness #mentalhealth #mentalillness #mentaldisorder #chronicillness #chroniclife #chronicpain #disability #selfcare #parrotlet #bluefallowparrotlet #blueparrotlet #cutenessoverload #cutiepie #cuteanimals #cutebirds #bird #birdsofig #cutepets #petbird #petparrotlet #pocketparrot #cheerup #workbuddy #working
#Throwback to when we first got Rudie, with his traumatised beak and all ❤️⠀ .⠀ .⠀ .⠀ .⠀ .⠀ #chroniclife #chronicillness #chronicpain #chronicdisease #spoonie #spoonielife #invisibleillness #mentalhealth #mentalillness #mentaldisorder #wellbeing #healthandwellness #wellness #bird #birdie #birdsofinstagram #budgie #budgerigar #parakeet #parrot #animal #pet #cute #hug #therapy #feathers #love #sleep #snuggle
Cuddle time with Piper aka Baby. #comforting #throwback .⠀ .⠀ .⠀ .⠀ .⠀ #chronicillness #chronicdisease #chroniclife #chronicpain #spoonie #spoonielife #mentalhealth #mentaldisorder #mentalillness #mentalhealthawareness #disability #invisibleillness #cuddles #cuddletime #cuteanimals #birdsofig #birdsofinstagram #parrotlet #greenparrotlet #aww #cutiepie #cutenessoverload #sleepy #sleepytime #gotobed #fluffy #snuggles #paindistraction
Aaah. To be a bird. But in actual fact, they are the ones who do my mental wellness good 🙂 .⠀ .⠀ .⠀ .⠀ .⠀ #cockatiel #birdlife #birdsofig #birdsofinstagram #bird #cutenessoverload #cuteanimals #chronicillness #chroniclife #chronicpain #chronicdisease #spoonie #Spoonies #spoonielife #spoonieproblems #mentalhealth #mentalillness #mentaldisorder #disability #invisibleillness #achronicvoice #enjoy #relax #headrubs #thisisthelife #bliss #massage #suckerforheadrubs #imlovinit #tame
with different people to gain new perspectives. Finally, I went for a lymphatic drainage massage to see if it would help with those nerve tingling sensations. I enjoy chatting with Veron, as we share a number of common topics of interests. I also think it’s important to chat with and listen to many different kinds of personalities, perhaps not to agree with, actually, especially not to agree with. But to learn new perspectives, and to challenge my own way of thinking.
You never know what insights you can glean from a friend, or even a random person off the street. And isn’t it fantastic to learn more about how others deal with life? We’re all navigating this same element of ‘time’, yet with variable situations, capacities and resources. Our ability to choose makes all the difference. I’ve learned quite a bit this month chatting to various people, and would like to stretch my mind even further through the knowledge that each and every person out there has to share.
Thank you for reading, and I hope to read your responses for August’s prompts too! Click here to submit your own entry, and to read about what others are up to as well!
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