Friday, 03 Aug 2018. Issue #121.
In this issue: A sad loss of a loved one to kidney failure and COPD, RIP 🙁 Things not to say to someone who suffers from chronic pain despite the unpredictability, which can make it seem unbelievable. There are homeless people on the street suffering from mental illnesses, and they too need help. Hypersensitivity from ME/CFS can make one reclusive in order to avoid painful triggers, but do continue to interact with them! Don’t blindly accept a diagnosis that doesn’t seem to make any sense; ask helpful questions in order to find the answers you need. Chronic illness is exhausting to the point where you don’t even have to get out of bed to be tired. A smiley pic of me to raise some awareness on invisible illness! Feeling like an old woman trapped in a young body, and the compassion you learn from having suffered. The struggle to feel any positivity towards your own broken body. Some fast facts about the straw ban, as seen through the eyes of a disabled person.
“My #mother lost her battle with #COPD and multiple #kidneyfailure (she was born with only one) on Friday the 13, 2018. She was born on April Fools Day, 1944”: https://t.co/iYvoqx6O1z @SpoonieW #spoonie #death
— A Chronic Voice (@AChVoice) August 1, 2018
“Many people don’t understand how someone can go from feeling horrible to great, and vice versa, so quickly. And with that #misunderstanding comes doubt that you’re even sick at all”: https://t.co/xgrrrkeeuP @s_shannonagins #awareness #invisibleillness #chroniclife #empathy
— A Chronic Voice (@AChVoice) July 27, 2018
“It’s not because we can’t afford to care for the sick, it’s because we don’t want to. We tend to see the sick as weak or unworthy, we are told that #health spending is out of control but this is not true”: https://t.co/DmIO3Tu0vN #mentalillness #chronicillness #society #humanity
— A Chronic Voice (@AChVoice) July 31, 2018
“please do NOT avoid…your friend just because u are afraid you will cause them harm. We still crave #human interaction & your visit could give them the mental lift they need to fight another day”: https://t.co/RrRUxIFKDl @JourneyFog #pwme #hypersensitivity #friendship #spoonie
— A Chronic Voice (@AChVoice) August 2, 2018
“Don’t just accept the word of your #doctor. Don’t blindly accept his #diagnosis. Ask #questions. Especially, when the signs, and symptoms are subjective, and not backed by accurate testing”: https://t.co/EUdLMbRsMR @JSchling #spoonies #chroniclife
— A Chronic Voice (@AChVoice) August 2, 2018
“My kind of tired comes from within my body. I’m #tired, weary, from the constant battle waring inside me. #ChronicIllness is exhausting, and I don’t even have to get out of bed”: https://t.co/Fyy7wljloK @achysmileblog #chronicpain #spoonie #chronicfatigue
— A Chronic Voice (@AChVoice) July 29, 2018
Posting this pic for some #awareness! You probably can’t tell, but I had a rather depressing day, as I decided to go collect some new meds… (read more): https://t.co/0PI5lFXDDO #spoonie #sjogrenssyndrome #chroniclife #invisibleillness pic.twitter.com/zzwZvOIzsI
— A Chronic Voice (@AChVoice) July 26, 2018
“it is very evident to me when I meet someone who has been through a severe and long-lasting trial that is chronic in nature. #Compassion and #empathy just oozes out of them”: https://t.co/tZQBx99yeG #chroniclife #spoonie #selfcare
— A Chronic Voice (@AChVoice) August 2, 2018
“I used to be extremely thin and toned and now my #illnesses have worsened and I am struggling to feel any #bodypositivity with my #disability”: https://t.co/Am0bv71wyI @bloomingmindxx #spoonie #chronicillness
— A Chronic Voice (@AChVoice) July 29, 2018
“The idea of losing access to an important piece of assistive technology is certainly terrifying, and for some people it can be as intense as losing the ability to drink”: https://t.co/3QLr7JqffJ #StrawBan #invisibleillness #awareness #society #disability
— A Chronic Voice (@AChVoice) July 28, 2018
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