Friday, 10 August 2018. Issue #122.
In this issue: My loyal cockatiel companion checking in on me post-seizure! The big difference between pain tolerance vs pain threshold. Lessons learned from being a patient, through the eyes of a nurse. What it’s like to survive depression again and again, with the weight of misconceptions heaped onto it. The fear that we can’t re-adapt into society, should we ever be able to depart from our state of isolation. A milestone reached – 10,000 followers on Twitter, thank you all for your support! Do you experience any warning signs for your fibromyalgia flares? Things I liked in July, especially me Kindle Paperwhite! Using pre-emptive as a coping strategy, post stem cells treatment for Lyme Disease. Disability myths that can build up in your head, if you don’t take the time to learn more about the person.
Had a full blown #seizure in my sleep last night. Didn’t know until my partner told me so. Today is an irregular one filled with brain confusion, #headaches, & all that. But here’s my loyal companion who checks in on me 🙂 https://t.co/MnC0EW7lj8 #cockatiel #tonicclonic #spoonie pic.twitter.com/FttBmLfYRG
— A Chronic Voice (@AChVoice) August 3, 2018
“Pain tolerance is how much #pain you can handle while still functioning (for me, this means how much pain I can handle w/o taking #meds). Pain threshold is when yr body actually starts to feel pain”: https://t.co/88G5SEckkm @TheMightySite #chronicpain #invisibleillness #spoonie
— A Chronic Voice (@AChVoice) August 5, 2018
“I will always stand by my feelings that every #medical provider should have to be a patient for at least a short period so they can experience things from the other side of the bed”: https://t.co/KHobzkTqs2 @Lupiewarrior511 #patientcare #nursing #healthcare #chronicillness
— A Chronic Voice (@AChVoice) August 5, 2018
“#Depression isn’t awarded any of those luxuries. Instead, we, the #depressed, get told we just need to smile more with a pat on the back that our ‘#sadness’ will go away soon. Or our willpower is insulted”: https://t.co/tbKJ6VVxNr @TheMightySite #mentalhealth #mentalillness
— A Chronic Voice (@AChVoice) August 7, 2018
“If I am ever well enough to leave the safety of my cocoon, will I even recognise the world that greets me? How will I adapt?”: https://t.co/CpkHITVQIr @JourneyFog #spoonies #chroniclife #chronicillness #society #selfawareness
— A Chronic Voice (@AChVoice) August 3, 2018
Thank you everyone for your #support, #friendship and conversations. Here's to many more meaningful interactions to come! #spoonie #chronicillness #chroniclife pic.twitter.com/xLDIOHezYu
— A Chronic Voice (@AChVoice) August 4, 2018
“This whole thing reminded me of how #fibromyalgia flares work sometimes for me. Sometimes they’ll come with warnings, but sometimes they just seem to come out of nowhere”: https://t.co/GlEEo55xcO #flareups #chronicpain #spoonie #chronicillness
— A Chronic Voice (@AChVoice) August 9, 2018
[New Post] "I wondered if a #Kindle would help me to read more books, and I got my answer in July, when my partner gifted me with one!": https://t.co/ZyJLWERBfQ #giftidea #chronicpain #selfcare #amreading
— A Chronic Voice (@AChVoice) August 6, 2018
“I’ve always been a fan of pre-emptive rest (i.e. #resting before you need to) and I continue to use this strategy even now”: https://t.co/tBJPXikHhA @febstarsblog #stemcells #lymedisease #lyme #chronicillness
— A Chronic Voice (@AChVoice) August 4, 2018
“Sometimes if you don’t take the time to get to know someone with a #disability you may develop certain ideas in your head that you think are true but actually are not”: https://t.co/AKfjVL7zBo @sarahlynn358 #misconceptions #awareness #society #invisibleillness
— A Chronic Voice (@AChVoice) August 6, 2018
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