Friday, 05 October 2018. Issue #130.
In this issue: Why is it that others are always demanding proof of our pain? How do the seasons play a role in your lives in combination with chronic illness? The judgment of society on those who can walk, yet would like to use a wheelchair to improve their quality of life. The loneliness thrusted upon you when you can no longer leave your bed. When pain consumes you during a flare, and encouraging words lose meaning. The complexity of chronic pain, where the pain itself is of less importance than the duration. The need to cut off toxic people, no matter who they are. Celebrating Invisible Disabilities Week every October. The challenge and neverending self blame with post-exertional malaise (PEM). Quotes that light a flicker of hope.
"I am made to feel #guilty abt my #chronicillness that I have no control over. How come it’s not enough for me to express my pain & sickness? Why does everyone need proof? Are my words & cries for help not enough?": https://t.co/S95Y25Hqkj #spoonie #chronicpain #invisibleillness
— A Chronic Voice (@AChVoice) October 3, 2018
[New] "I’m curious as to how the #seasons play a role in your lives, especially in combination with #chronicpain and illness. Have a look at the #writingprompts below, and hope to hear from you!": https://t.co/pF71xvhbDX #mondayblogs #disability
— A Chronic Voice (@AChVoice) October 1, 2018
"If I was to use a #wheelchair, then all of a sudden this becomes a possibility for me. But, according to #society, I can walk, so I shouldn’t have to use one": https://t.co/sQdzeSDPLh @TheMightySite #disability #awareness #invisibleillness
— A Chronic Voice (@AChVoice) September 30, 2018
“Being #alone and #loneliness is forced upon us as we can no longer work, socialise, or leave our homes or even our beds”: https://t.co/KmJBJ45QqU @thefrenchfemme #mecfs #chronicillness #mentalhealth
— A Chronic Voice (@AChVoice) September 30, 2018
“People assure me of my bravery and #resilience in the face of illness. However, it’s during such flares that words such as bravery and resilience cease to have any meaning to me”: https://t.co/rhL1Z06wa9 @serenebutterfly #courage #painflares #chronicpain #spoonie
— A Chronic Voice (@AChVoice) September 29, 2018
"This part of the whole #pain issue doesn’t get near enough attention because the severity of the pain is almost not as important as the duration": https://t.co/IUtxCbVr3W @TheMightySite #chronicpain #awareness #chronicillness #invisibleillness
— A Chronic Voice (@AChVoice) September 29, 2018
[Archives] "When such people infringe on my peace and drain me of my already limited energy supply, then I need to cut them off, no matter who they are": https://t.co/Mw3cdfboqX #humility #advocate #spoonie #strongertogether #invisibleillness
— A Chronic Voice (@AChVoice) September 29, 2018
“Invisible #Disabilities Week takes place every year in the middle of #October. It's designed to celebrate all #invisibleillnesses”: https://t.co/x0sfofn3CO #chronicillness #awareness
— A Chronic Voice (@AChVoice) October 3, 2018
“Then comes the mental torture where you give yourself a hard time for having enjoyed yourself too much, or for doing that one extra task that you wish you’d ignored”: https://t.co/y21G7uXiKh @Not_Just_Tired #mecfs #pwme #chronicfatigue #PEM #chroniclife
— A Chronic Voice (@AChVoice) September 28, 2018
“Sometimes the #strength within you is not a big fiery flame for all to see, it is just a tiny spark that whispers softly ‘#Yougotthis, keep going’”: https://t.co/C1muRmkyF5 @lauras_pen #quotes #hope #chronicpain
— A Chronic Voice (@AChVoice) September 28, 2018
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