Friday, 12 October 2018. Issue #131.
In this issue: The frantic hope for a change in heart rate when you live with a heart rhythm disorder. What’s your biggest trigger for a flareup? – come share your experiences and knowledge. There’s nothing worse than being unable to sleep from painsomnia, and tips that might ease it. From a sister’s perspective – the loss of a brother to suicide, due to chronic pain and disbelief. The mini pharmacy you bring along on your trips when you travel with chronic illnesses. Setting reminders to point you toward relief and comfort during flare ups. The funny but painful reality of living ME/CFS. Treatment for Rheumatoid Arthritis may be less effective if depression isn’t addressed, and how it can affect your sex life. Stop feeling guilty or stressed out for resting, or you will fail to rest at all. Making the active choice to be happy, even though you’re still in pain.
[New Post] “During these episodes I’d have my #BP monitor strapped on for dear life, sometimes even for hours. I’d hit the start button over & over again, in hope for a sign of improvement”: https://t.co/nbDB7RYSpM @AeroflowInc @ChronicBlogs #chroniclife #PSVT #spoonie #heartrate
— A Chronic Voice (@AChVoice) October 6, 2018
[New] #Flareups: What’s Your Biggest Trigger? – I’m doing a few #roundups about #painflares on my blog. You can contribute in this form if you’d like to share! https://t.co/0ofbg2dqA9 #chronicillness #chronicpain pic.twitter.com/3lSW15BPTd
— A Chronic Voice (@AChVoice) October 4, 2018
“There’s nothing worse than trying to get #sleep when your body can’t even find a position that doesn’t hurt. When the pain is severe, all you can sometimes do is try to endure the darkness”: https://t.co/xdIUUveEg1 @Lasehrman #painsomnia #chronicpain #chronicillness #spoonie
— A Chronic Voice (@AChVoice) October 6, 2018
“I wasn’t crying because I miss Ray which I do w all my heart, I cried because while I was there to see what he went thru on a daily basis it suddenly sunk in what it must have been like to be Ray”: https://t.co/C9jdc5DUTf #chronicpain #suicide #mentalhealth #doctors #awareness
— A Chronic Voice (@AChVoice) October 6, 2018
[Archives] “As someone with #chronicillnesses, I am prone to #infections & random ailments pop up all the time. So I bring along sachets & pills for food poisoning, UTIs, colds & other minor problems”: https://t.co/oPPgzA4fe1 #spoonielife #travelhacks #painmanagement
— A Chronic Voice (@AChVoice) October 6, 2018
“I have also found that it helps to have a few #reminders set up for things that #comfort me (I tend to forget even the simplest things that can help me during a flare). I will just wilt away & wonder why”: https://t.co/G1ZEYanOFL @thefibromama #chroniclife #chronicpain #flareup
— A Chronic Voice (@AChVoice) October 10, 2018
“In order to have M.E. successfully u should acquire a cleaner, gardener, cook & a..handyman. If this is impossible, u should find a rich, devoted, non-talkative partner w few outside interests”: https://t.co/NKacd1uYIu @chronic_hopeful #mecfs #pwme #chroniclife #spoonies #cfs
— A Chronic Voice (@AChVoice) October 7, 2018
“Studies show that if #depression occurring with #rheumatoidarthritis isn’t addressed, the treatment for rheumatoid arthritis itself can be less effective”: https://t.co/uLKTROzsxA @CreakyJoints #RA #sexualhealth #chronicpain
— A Chronic Voice (@AChVoice) October 5, 2018
“stop making yourself feel guilty or stressed whenever you do take time out to rest. If you spend the whole time doing this, you won’t even feel rested when it is over”: https://t.co/19ZJD10Q0n @PainWarriorCode #PainWarriorPepTalk #selfcare #healing #resting #chronicillness
— A Chronic Voice (@AChVoice) October 6, 2018
“My generally cheerful demeanor isn’t because I’m feeling great. It is because I will live with these conditions all my life, and actively make the choice to be #happy despite what I live with”: https://t.co/UkL0XuA4M1 #selfcare #mentalhealth #spoonielife #chronicillness
— A Chronic Voice (@AChVoice) October 6, 2018
If you liked this article, sign up for our mailing list here so you don’t miss out on our latest posts. You will also receive an e-book full of uplifting messages, quotes and illustrations, as a token of appreciation!

very interesting xx Tiredness makes me flare. Then the flare makes me tired. Its like being on a treadmill.
Yes, that sucks because you can’t get off that treadmill!