Friday, 07 December 2018. Issue #139.
In this issue: Savouring in the bright, happy vibes of December. Lupus doesn’t care that it’s the holiday season, and the need to deal with it because there’s no other way. When society sets cancer as the benchmark illness, and downplays other forms of pain compared to it. A gentle reminder that it’s okay to say no, and care for yourself, too. Living with chronic illness can impact your self-worth, and how to forgive yourself in order to move forward. Looking at how far you’ve come, and asking of life what it needs from you at every new beginning. Happy shares on social media can affect those who are lonely during this holiday season. Living with Lupus is difficult, but it also clarifies and adds purpose to life. Being unwell forever is frightening, and seizing that rare good day when you can. How all the health tips on mainstream media don’t help those with chronic illnesses or other needs.
[New Post] “But I love how bright, happy and festive everything looks out & about, and even online. I’m savouring the joyful vibes, delicious food, and cosy moments”: https://t.co/3ENnpaHuQd #gratitude #TwitterTuesday #december #InvisibleIllness #ChronicLife
— A Chronic Voice (@AChVoice) December 4, 2018
“#Lupus doesn’t care it’s the #holidays. It doesn’t care about the fun I want to have or the time I want to spend with loved ones. I learn to live with it, because I do not have a choice”: https://t.co/hg0ECUSt8C @onetoughspoonie #medication #chronicillness #spoonie
— A Chronic Voice (@AChVoice) December 5, 2018
“I’ve been told by strangers & #friends alike: ‘For crying out loud, people have #cancer, quit your whining’ & ‘At least you don’t have cancer,’ and even ‘How dare you compare other #diseases to cancer!'”: https://t.co/BrfLwQS8ce @BeingCharisBlog #chronicPain #invisibleIllness
— A Chronic Voice (@AChVoice) December 4, 2018
This week’s #SundayInspiration: A gentle reminder to take some time to care for yourself today, too ❤️ https://t.co/rFNsFYBC3U @JourneyFog #spoonies #selfcare #sayno #mentalhealth https://t.co/OSoQYawuxX pic.twitter.com/R9u8HyymSh
— A Chronic Voice (@AChVoice) December 2, 2018
“When you realize you’re not taking care of yourself, #forgive yourself immediately, and #tryagain“: https://t.co/miyCwua5Di @MigraineMantras #spoonies #chroniclife #chronicillness
— A Chronic Voice (@AChVoice) December 4, 2018
[Archives] “So I urge you and me to pause and see how far we’ve come, ask of #life what it demands from us, and then strive for it”: https://t.co/p4cRKTlRXI #thrive #spoonie #chronicpain #selfawareness
— A Chronic Voice (@AChVoice) November 30, 2018
“#Christmas can be a #lonely time, and observing ‘happy #families’ and festivities on #socialmedia, can be painful”: https://t.co/728OP5uoCP @JourneyFog #awareness
— A Chronic Voice (@AChVoice) December 5, 2018
“Being diagnosed with #lupus made my life very difficult, but it also served to clarify my life and ultimately make it more purposeful and rewarding”: https://t.co/kwyKjXJBQz @MyMeenaLife #lifelessons #sicklessons #chronicillness #spoonielife
— A Chronic Voice (@AChVoice) December 4, 2018
“The prospect of being unwell for my entire life is terrifying and I don’t know when a #goodday will come around, so when they do I grab it with both hands and make the most of it”: https://t.co/pJVKWIyzZz @charleighwrites #ChronicIllness #awareness #society #ChronicLife
— A Chronic Voice (@AChVoice) December 3, 2018
[New Post] “when I hear those well-meaning commercials or article taglines, while I know it aligns with the needs of most people, I can’t help but cringe. Real #sleep and ME just don’t mix”: https://t.co/frnzclqd7H @lisaalioto #mecfs #GuestPost #spoonie #pwme
— A Chronic Voice (@AChVoice) December 6, 2018
*Note: This interview is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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