Friday, 11 January 2019. Issue #144.
In this issue: No matter how small your effort may seem, it is still a 100% contribution when you’re in pain. The vicious cycle of guilt when you keep trying to get stuff done on bad days. Beware of emotional support dog! The rarer the disease is, the more important it is to talk about it. Resting is not a waste of time, and your needs are not valueless. The fixed image in abled people’s heads of what disability looks like, and the judgment that comes with it. You need to pace yourself, even if your goals may not even be seen as goals to healthy people. Establish a community through blogging. Embracing the fighter within you, as you muster the courage to face each new day. If only pain could be quantified and thus measured.
[Archives] “If you’re #suffering so much, then shouldn’t it be 100% #effort counted on your part, too?”: https://t.co/47fvFMwoUL #cooltruths #chronicpain #mondayblogs
— A Chronic Voice (@AChVoice) January 6, 2019
“This has led to a stupid but vicious cycle of #guilt, which has led to #sleepless nights and #unproductive days. I accomplish nothing despite all the hard work worrying, but it’s like an infinite loop that has crashed the system”: https://t.co/g4ghmENrrj #chroniclife #worry
— A Chronic Voice (@AChVoice) January 4, 2019
“I’d love to have a #dog like that though 😉”: https://t.co/0tUQ1rekj0 #emotionalsupport #dogsarelove #memes #mentalhealth pic.twitter.com/K5QM2eQkdi
— A Chronic Voice (@AChVoice) January 6, 2019
[New Post] "This has made me realise that the rarer the disease is, the more important it is to talk about it": https://t.co/cORL7ZOmrc #RareDisease #chroniclife #spoonies #mentalhealth #awareness
— A Chronic Voice (@AChVoice) January 9, 2019
“I will not consider #resting, even for the entire day, a waste. I obviously needed it and my needs are not valueless”: https://t.co/bqm5mGbf3K @lisaalioto #selfcare #spoonie #chronicillness #resolutions
— A Chronic Voice (@AChVoice) January 4, 2019
“Abled people are very quick to judge the abilities of people who don’t ‘look #disabled to them’, or fit the antiquated image they have in their mind”:. https://t.co/dK6WspONN7 @lolabellaquin #ableism #disability #society #awareness
— A Chronic Voice (@AChVoice) January 8, 2019
“My #goals are probably seen by others as not even worthy of being considered a goal. When you have a #chronicillness that has limited your energy you go back to the basics”: https://t.co/KcFpbiTMec @TheFrznMind #pacing #chroniclife #painmanagement
— A Chronic Voice (@AChVoice) January 6, 2019
“Right now, I want to work on establishing a #community. Everything else can come later”: https://t.co/IMClK7D9ru @join_tmp #spoonie #chroniclife #mecfs #blogging
— A Chronic Voice (@AChVoice) January 8, 2019
“we approach the unknown of #everydaylife with #courage, fighting for a semblance of a life”: https://t.co/fTuh3tv1op @serenebutterfly #chronicillness #chronicpain #spoonies
— A Chronic Voice (@AChVoice) January 4, 2019
“If only #pain were as easy to measure as, say, volume. As height, or weight, or speed”: https://t.co/8YTTHO6Ehm @atlanticvampire #chronicpain #painchart #spoonieproblems #awareness
— A Chronic Voice (@AChVoice) January 5, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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