Friday, 29 March 2019. Issue #154.
In this issue: Even optimists get tired when the fight never relents. When the damaging psychological side effects of steroids are brushed aside as unimportant, compared to the physical symptoms. When unbearable pain becomes your normal. When Functional Neurological Disorder (FND) is poorly misunderstood, and even deemed as attention seeking. The health benefits of taking a social media break, in a society that never sleeps. Fab tips from others with chronic illness, on how they keep themselves motivated on the tough days. The worst thing you can do to some a person who’s chronically ill is to make them prove their pain. The small things that help with enjoying life, despite the pain. When misdiagnosis leads to an amputation, and the need for Deep Vein Thrombosis and Arterial Thrombosis awareness. Living with invisible illness and the judgments that come along with it is torturous, yet here you are, living despite it all.
“I try my best to be #positive, I’m a born optimist. But sometimes I don’t have the energy or will to look on the bright side. I’ve had to fight so hard in my life and it’s bloody exhausting”: https://t.co/2GNgx7jfeX @JourneyFog #spoonies #chronicillness #depression #chronicpain
— A Chronic Voice (@AChVoice) March 22, 2019
[Updated Post] "I was a #teenager when I had my first taste of #steroids. Everyone around me was so focussed on the physical aspects of my disease, that the #emotional wreckage brought about was brushed aside as unimportant": https://t.co/lSs9buFH9c #ChronicIllness #depression
— A Chronic Voice (@AChVoice) March 24, 2019
“There is a storm brewing. I can feel it in my #face – the way my eye burns, a vice tightens on my skull, & one hundred knives fresh off the whetstone slice at my gums. Just for starters”: https://t.co/zZlrY72qOL @Verve16676192 #chronicpain #invisibleillness #chroniclife #weather
— A Chronic Voice (@AChVoice) March 23, 2019
“I have had people assume I was having #seizures, intellectually #disabled, and/or faking for attention at various points”: https://t.co/CHkT93yIzi @TheFrznMind @Thrivingwdisabl #FND #neurologicaldisorder #spoonie
— A Chronic Voice (@AChVoice) March 25, 2019
“As Matt Haig puts it: ‘we live in a 24-hour #society but not in 24-hour #bodies.’ It’s impossible to keep up with the chaotic world we live in without damaging our #health, so don’t be afraid to do what’s best for you”: https://t.co/WUpVaO98iO @JourneyFog #SelfCare #SocialMedia
— A Chronic Voice (@AChVoice) March 26, 2019
[Archives] "We all have those days where we aren’t motivated to do anything…How do you get yourself up and going again?" – here are some fab tips from others with #chronicillness: https://t.co/cKcVTXIrlv #motivation #ProjChronicWisdom #LifeLessons #spoonies
— A Chronic Voice (@AChVoice) March 28, 2019
“The worst thing you can do to a person with an #invisibleillness is to make them feel like they have to prove how #sick they are”: https://t.co/QuKqETbjHk #spoonies #chronicpain #empathy
— A Chronic Voice (@AChVoice) March 24, 2019
“I enjoy living…I don’t enjoy waking up with pain every morning, but I do enjoy waking up! There are always things which make me smile. #Smallthings…which help me #enjoylife, despite my pain”: https://t.co/ILXLr28uMH @DespitePainBlog #ChronicLife #ChronicPain #spoonie
— A Chronic Voice (@AChVoice) March 27, 2019
“He was then taken into hospital, where the #DVT affected the #bloodflow to his lower left leg, leading to him needing it amputating”: https://t.co/3HFngJG73w @thespooniemummy #amputation #deepveinthrombosis #bloodclots
— A Chronic Voice (@AChVoice) March 23, 2019
“Living with a #invisibleillness is torture. No one knows the pain you feel, and judge you in comparison to their own expectations and #assumptions. And yet here you are..Living..In spite of it all”: https://t.co/4q354zNEB9 @shawnbethea_ #chronicpain #chronicillness #spoonies
— A Chronic Voice (@AChVoice) March 23, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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I actually just took a social media break and it felt amazing! I felt so free and it makes you realise there is so much more in life. But I’m not gonna lie, it feels good to be back. I love the chronic illness community and met so many amazing people I could not miss!
Hi Kirsten, totally agree. I think the shift in perspective can also be very really refreshing and helpful! It’s hard to strike a balance for me though, heh. Lifelong lessons! 😉