Friday, 05 April 2019. Issue #155.
In this issue: You don’t need to prove your self-worth by pushing yourself harder, especially when you have so much to deal with already. Retreat and surround yourself with supportive resources, so you can regenerate better. When you find a super comfortable piece of clothing, buy in bulk! It’s heartbreaking when you wake in pain every day, and worse when it becomes your norm. When you get ‘normal’ illnesses on top of your usual pains, living can feel like a chore in itself. Even a crumb of gluten can inflame a celiac’s immune system for months on end, and why a gluten-free diet isn’t the ultimate fix. A single mother who lives with Rheumatoid Arthritis, and tries to be the mother she needs to be. Breaking the stigma on incontinence and sexual dysfunction in women with EDS. Medical related books to read, to gain perspective on doctors, nurses, and other healthcare professionals. Communication is key to building a good doctor-patient relationship.
“You don’t have to be constantly pushing yourself to prove your #selfworth. You have enough to contend with. You don’t have to be challenging yourself everyday – finding #enjoyment and #happiness is much more important”: https://t.co/Zvkd0stRjL @JourneyFog #spoonies #ChronicPain
— A Chronic Voice (@AChVoice) April 3, 2019
[Archives] "I allow myself to rest and retreat, and surround myself with comforting and #supportive resources. These all help me to #regenerate even better": https://t.co/0dMtF0ojRD #selfcare #selflove #chronicillness
— A Chronic Voice (@AChVoice) April 1, 2019
“My mom has always recommended that if you find something super-#comfortable, buy more than one—especially if it’s on sale. This has been a huge help for me”: https://t.co/vIy5Mi11OB #spoonie #ChronicLife #PainManagement #clothing
— A Chronic Voice (@AChVoice) March 31, 2019
“When you start expecting to wake up with the pain every day. That’s terrible. When you don’t even notice anymore, and when it becomes your normal. That’s heartbreaking”: https://t.co/NSIlhNAKY1 via @TheMightySite #spoonies #awareness #InvisibleIllness #society #ChronicPain
— A Chronic Voice (@AChVoice) April 1, 2019
[New Post] "When you get ‘#normal’ sicknesses on top of your ‘regular’ daily chronic pains, life can feel like a chore in itself. Like rotten garnishing to your usual stew of issues": https://t.co/JE7p6XDfMf #ChronicPain #SpoonieProblems #ChronicIllness #WritingPrompts
— A Chronic Voice (@AChVoice) March 31, 2019
“But the problem is, if you suffer from #CeliacDisease, eating any #gluten at all (even just a crumb) inflames your #immunesystem for about 3 months”: https://t.co/Vv2KsezUXD #celiac #chronicillness
— A Chronic Voice (@AChVoice) April 2, 2019
“She is a #singlemother and doesn’t have the option of taking a sick day from life. Managing her #health and #arthritis became her full-time job. ‘I tried to find answers so I could be the mother I needed to be’”: https://t.co/U46ZFxmvMp @chroniceileen @Arthritis_ARC #spoonie #RA
— A Chronic Voice (@AChVoice) April 4, 2019
“when #incontinence is a regular admission of women over 40 with #EDS, you know #sexualdysfunction is also a thing and I want to break the silence around this subject”: https://t.co/H4geiYvrHu @caplestrange #SexualHealth #ChronicIllness
— A Chronic Voice (@AChVoice) March 31, 2019
“#Reading medical #books have changed how I view #healthcare and those that work in #medicine. I feel more respect, patience, and awareness, all of which are things that have helped me with my time being chronically and mentally ill”: https://t.co/zElp9Grbpg #ChronicIllness
— A Chronic Voice (@AChVoice) April 3, 2019
“a #doctor should never be a dictator. It should never be a ‘it’s his way or the highway’ situation. In order to have a good patient and doctor relationship, #communication is key”: https://t.co/5yo1vfiKsP @TheFrznMind #SelfAdvocacy #spoonies #ChronicIllness
— A Chronic Voice (@AChVoice) March 31, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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