Friday, 19 April 2019. Issue #157.
In this issue: Autoimmune disorders mimic so many symptoms that even doctors have difficulty telling them apart at times. Living with chronic illness is a constant education on coping mentally and physically. Gratitude may be a simple activity, but it trains your brain to seek positivity. Emilia Clarke’s commitment to raising awareness and transforming aftercare for brain injury. The shock of seeing your ravaged face, as doctors try to stabilise your symptoms. It’s difficult to cope as it is with chronic illness, without the addition of ‘regular’ sicknesses. The subtle blood thinning effect of certain foods you need to watch out for with a blood clotting disorder. Imagining a day of painlessness, and thoughts of self medicating. Perspective on depression as a form of grief, for our lives not being what it should be. Breaking the stigma on anal cancer, and gratitude for a body that functions as intended.
The conversation with my #doctors went mostly like this:
Doctor: “Do/Did you have any joint pains or muscle aches?”
Me: “But that’s #normal for me.”
Doctor: “There are some #rashes here.”
Me: “But that’s normal for me…”: https://t.co/Ps1SCGznIu #Lupus #TwitterTuesday— A Chronic Voice (@AChVoice) April 16, 2019
“I think life with #chronicillness is a constant personal #education in coping mentally and emotionally. And I think that is how we #persevere. It is also an education for those in our immediate world”: https://t.co/g5NN9ytkSA @Nikki_Albert #prompts #caregivers
— A Chronic Voice (@AChVoice) April 15, 2019
[Archives] "But this ‘simple’ activity actually trains your #brain to seek out the positive aspects of your life. Instead of focussing on your #pain, it learns to seek out things to be #grateful about through your firm commitment": https://t.co/jyl68bDkMj #positivity #selfbelief
— A Chronic Voice (@AChVoice) April 17, 2019
“I really…am gonna put my heart, soul and back into transforming aftercare for #braininjury #recovery and also just simply bringing #awareness to the invisible disease that is brain injury”: https://t.co/DVPMRdRS7m @TheMightySite #spoonie #InvisibleIllness
— A Chronic Voice (@AChVoice) April 14, 2019
[New Post] "…#doctors tried their best to stabilize my symptoms. For some reason, having to be on oxygen..didn’t freak me out…what really scared me was seeing a photo of my #face": https://t.co/9ewNrKc4Jq @metraux_julia #BodyDysmorphicDisorder #RareDisease #ChronicBlogs
— A Chronic Voice (@AChVoice) April 15, 2019
“Living with #chronicillness is hard enough, so the addition of these extra #challenges has pushed me over the edge, and I’m struggling to cope”: https://t.co/ZFfGBdiYFO @JourneyFog #linkup #kindness #ChronicLife
— A Chronic Voice (@AChVoice) April 14, 2019
[Archives] "I once ate a plate of #quinoa, only to wake up w a giant bruise covering my entire arm. I discovered that it wasn’t the seed itself, but the hull which contains blood thinning agents called #saponins": https://t.co/1UmNcvw1xg #bloodthinner #Antiphospholipid #bleeding
— A Chronic Voice (@AChVoice) April 13, 2019
“Imagine a day of painlessness. Being able to think again without me flinching from the tsunami of pain which will inevitably arrive”: https://t.co/zakbWLEWED @A30MinuteLife #ChronicPain #SelfMedicating #spoonie #MentalHealth #ChronicIllness
— A Chronic Voice (@AChVoice) April 18, 2019
“What if #depression is, in fact, a form of #grief—for our own lives not being as they should? What if it is a form of grief for the #connections we have lost, yet still need? —Johann Hari”: https://t.co/WLu9ZTJPmh @nickwignall #MentalHealth #SelfAwareness
— A Chronic Voice (@AChVoice) April 14, 2019
“Every time I go to the bathroom, I think, ‘That’s awesome! Thank you, #body”: https://t.co/zqKex2KdEM @people #AnalCancer #anus #cancer #stigma
— A Chronic Voice (@AChVoice) April 12, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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