Friday, 03 May 2019. Issue #159.
In this issue: Painkillers can be helpful in nipping a big flare at the bud. Managing unnecessary stress of unwanted advice by either nodding along mindlessly, or adding to the block list in life. A blood test created by Stanford University to detect Chronic Fatigue Syndrome (Myalgic Encephalomyelitis). The power of steroids – good and bad. The incomplete picture of assessments for disability Blue Badges. Feeling stuck from both an unremovable growth in the brain, and side effects from the medications taken to control it. Don’t be afraid to fail, just have some fun along the way. Accepting help as a mother with chronic illness only benefits your whole family. It’s easy to persevere through acute pain, but chronic pain has no bright horizon you can set your sights on. Discussing with your employer how chronic illness impacts you specifically, so that you can work at your best capacity.
[Archives] " I was once adverse to using #painkillers..I’d only take them when the pain was killing me. These days however, I listen to my #doctor and take them before the pain hits in full force": https://t.co/0dMtF0ojRD #painrelief #chronicpain #painmanagement
— A Chronic Voice (@AChVoice) April 29, 2019
[Archives] "I just smile & nod a la Miss Universe style, chalking it up as their way of showing concern..unless they keep insisting..then I put them on the block list of my life. I don’t need the extra #stress": https://t.co/IXJhqykag7 #spoonie #ChronicPain #MentalHealth #health
— A Chronic Voice (@AChVoice) April 27, 2019
“Scientists at #StanfordUniversity have created a #bloodtest for the disorder that they proved 100 percent accurate in a small sample of patients”: https://t.co/qSpiuHk1bk @DailyMailUK #mecfs #ChronicFatigueSyndrome #MedicalResearch
— A Chronic Voice (@AChVoice) April 30, 2019
[Updated Post] "#Prednisone…often works when nothing else will; a giant stun gun that knocks your entire #immunesystem out. What you exchange for it are your defensive capabilities and sanity": https://t.co/lSs9buFH9c #MentalIllness #ChronicPain #InvisibleIllness
— A Chronic Voice (@AChVoice) April 27, 2019
“The assessor saw me complete a task that compromised my eligibility for a #BlueBadge. What they didn’t see was me afterwards, struggling to ward off the #payback long enough for me to get home safely”: https://t.co/8xZ8iHD6Ow @lifeofpippa_ #InvisibleIllness #disability #pwME
— A Chronic Voice (@AChVoice) April 25, 2019
“I am stuck knowing there is something growing in my #brain that should NOT be there. That sucks and is scary. I am also stuck with the #sideeffects of my new #medicine that really, I have no choice but to take”: https://t.co/sDAyqmpDng @blog_fibro #fibromyalgia #adenoma
— A Chronic Voice (@AChVoice) April 27, 2019
“Whatever #creative endeavour you pursue; #havefun, please don’t be scared to fail – you don’t have to be good at something to enjoy it”: https://t.co/8d3qaPzHJo @JourneyFog #ChronicLife #ChronicIllness #MentalHealth
— A Chronic Voice (@AChVoice) April 26, 2019
“It’s not easy to accept help, and you can also feel like you’re missing out on things, but I do know it’s essential. If I feel better than so do my #family”: https://t.co/icQQ5nyCuI @Not_Just_Tired #ChronicLife #ChronicIllness #guilt #MomLife
— A Chronic Voice (@AChVoice) May 1, 2019
"When you only need to deal with acute #illness for a short period of time, it’s easy to #persevere through the #pain, knowing that there’s an end in sight. But there is no bright horizon or happily ever after with #ChronicIllness": https://t.co/JE7p6XDfMf #WritingPrompts
— A Chronic Voice (@AChVoice) May 1, 2019
“But it’s more useful for (your #employer) to know the specific impact (#chronicpain) has on you…so that you can work together to figure out what you need to be able to stay in work”: https://t.co/4EfzP6Y0Nx @academiablues @CharlesGoffDeak #working #disability #chronicillness
— A Chronic Voice (@AChVoice) April 29, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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