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Issue #160: Hundreds of People with Chronic Illnesses Share Their Thoughts on What They Find Most Challenging, Besides the Pain Itself

Issue #160: Hundreds of People with Chronic Illnesses Share Their Thoughts on What They Find Most Challenging, Besides the Pain Itself | A Chronic Voice

Friday, 10 May 2019. Issue #160.

In this issue: Hundreds of people with chronic illnesses share their thoughts on what they find most challenging, besides the pain itself. Publication of a new book with proceeds going to the charity, “Invest in ME Research”. Friendship isn’t about changing people, but showing up for them when they are ready to do so for themselves. The fear that others think you are all better now, because you share some photos where you’re having fun. The challenges of taking care of yourself when you’re chronically ill, and the importance of trying just as hard to do so. Normalising mobility aids and pushing society forward, by using them as needed. The internal dilemma of advocating for your own needs when it might come across as ‘rude’. ME/CFS is actually twice as common as Multiple Sclerosis, and ways to show your support. Mothers are truly the superheroes of everyday life. The effects that medication can have on your mind, and your actions thereafter.

*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.

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