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Issue #162: When You Forget What it Feels Like to be Pain-Free & There are Many Sources of Hope, Which Looks Different for Everyone

Issue #162: When You Forget What it Feels Like to be Pain-Free & There are Many Sources of Hope, Which Looks Different for Everyone | A Chronic Voice

Friday, 24 May 2019. Issue #162.

In this issue: Feeling like a private investigator with chronic illness, as you seek out effective treatments. The admiration for and strength required to survive depression every day. A gentle reminder that bad thoughts will pass. There are many sources of hope out there, and it comes in different forms for each of us. Preparing hasty meals for your kids, and the addon mum guilt for being chronically ill. Kathy’s thoughts for the May linkup, and why not write that book? When your doctor doesn’t want to read the full list of symptoms on the printout, because it’s kind of scary. Each time you reach out to another patient, it helps them to feel less alone. When you forget how it feels like to be pain-free, as if visualising negative space. Mental health and fibromyalgia pain often come together, and is a year round issue.

*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.

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4 comments

  • What a wonderful bunch of resources. Being chronically ill really is like being an unpaid private investigator!

    • Thanks Lucy, there’s really lots of good resources out there, and also people’s personal experiences 🙂

  • Wow, what a great bunch of links and resources! I am honored to be included among such esteemed company. Thanks for all you do to help spread the word, extend support, and connect us all!

    Sue

    Living with ME/CFS

    • Hi Sue, you’re most welcome! I do this on a weekly basis because I have this weird fetish for crunching all the data by myself (between Buffer and Twitter analytics), and why not compile the best of the best as resource for others! Great work on your article x

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