Friday, 31 May 2019. Issue #163.
In this issue: Tips to improve your quality of life with some home and lifestyle changes, as a person with disabilities. Being hypersensitive to everything from light to vibration and temperature with Myalgic Encephalomyelitis. Living in silence with chronic illness for fear of being a burden, and how writing/blogging can help. It might be worth paying extra for a flexible ticket whilst travelling with a chronic illness, and other travel tips. Learning the difference between Crohn’s and Ulcerative Colitis. The painful difficulties of working a full-time job with chronic pain, and other ways to earn money. The problem with fibromyalgia and many other chronic illnesses is that you’re not sure if new symptoms are related, and just how important they are. Learning to listen to your own body, as doctors aren’t always right. Reflections on the permanence of Ankylosing Spondylitis, after 10 years of living with it. Funny memes and videos that spoonies will get.
[New Post] "Living with a #disability..can transform the simplest everyday task into a challenging beast..it might not be so bad of an idea to implement some #homeandlifestyle changes that could possibly improve your #qualityoflife": https://t.co/1XecsAmsXH #ChronicBlogs #spoonie
— A Chronic Voice (@AChVoice) May 26, 2019
“I’m #hypersensitive to everything!; light, touch, noise, smells, vibrations, foods, medication, chemicals, heat, cold and irritants..All of these things cause me pain, nausea, #fatigue, headaches”: https://t.co/SQ6zmZZKye @JourneyFog #pwME #ChronicIllness #mecfs
— A Chronic Voice (@AChVoice) May 28, 2019
[Archives] "We feel like a #burden to our #family and #society, and that we don’t deserve help because we are ‘defective’. As a result, many of us remain silent for the entirety of our lives, and nobody even knows.": https://t.co/iK6FgZwaqO #InvisibleIllness #MentalIllness
— A Chronic Voice (@AChVoice) May 25, 2019
[Archives] "It might be worth paying extra for a flexible ticket, where you can change the date & time of your #flight. I have had to delay my flight a few times as I was in too much #pain": https://t.co/oPPgzA4fe1 #chronicpain #spoonietravels #chronicillness
— A Chronic Voice (@AChVoice) May 24, 2019
“I see so many posts from people who don’t know which type of #IBD they have or saying they have both – which just is not possible! I thought I would do a post to explain”: https://t.co/defTQD7VQz @thespooniemummy #UlcerativeColitis #Crohns #colitis #ChronicIllness
— A Chronic Voice (@AChVoice) May 26, 2019
“If you have a #chronicillness, the prospects of working 9am-5pm can be unbearable, putting on a fake smile for customers to hide the pain”: https://t.co/B5IRMLmvQh #ChronicPain #ChronicLife #working #spoonies
— A Chronic Voice (@AChVoice) May 27, 2019
“The thing about #fibromyalgia is that…You have no idea if a pain or symptom is fibromyalgia or some other random thing that may or may not be important”: https://t.co/3aashT6AQj @Nikki_Albert #SpoonieProblems #fibro #ChronicIllness #ChronicPain
— A Chronic Voice (@AChVoice) May 25, 2019
“Learning first-hand at 17 that #doctors can be wrong (like, really #wrong) has meant that I listen to and believe my body above what doctors tell me about it”: https://t.co/YYAMUbPfVR @kmitchellauthor #ChronicIllness #spoonies #medical
— A Chronic Voice (@AChVoice) May 26, 2019
“You realize it doesn’t take much to break a person’s spirit. I didn’t know that I’d never know another day without #pain or that pain would be my closest companion”: https://t.co/txcORrDols @globetrotteri #ChronicPain #ChronicIllness #AS #spoonie
— A Chronic Voice (@AChVoice) May 28, 2019
“Laughter is good #therapy for the soul, so finding things to #laugh at every day, no matter how silly, can make things feel brighter”: https://t.co/HCKOT9usUm @invisiblymeblog #JustForGiggles #spoonies #ChronicLife
— A Chronic Voice (@AChVoice) May 25, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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