Friday, 28 June 2019. Issue #167.
In this issue: The struggle of living with a chronic illness that has unpredictable symptoms. Buried truths from pain left to rot, but germinate with a sprinkle of loving kindness. Morbid jokes help me to cope whilst living with chronic illnesses. The loneliness of ME/CFS and chronic illness, when friends and family turn from understanding to questioning. Knowing now to always get help if your mental health deproves, and that it’s okay to do. A Day in the Life of a young spoonie, and an illustration that even ‘mild’ chronic pain impacts quality of life. Find healthy ways that work for your mental health and grief of having a chronic illness. There is more than enough space for us out there – you are not a waste of space. The ability to complete tasks even whilst bedridden using speech recognition. Acceptance doesn’t mean that you stop fighting, but that you stop fighting your own self.
“That’s what people go thru when they hv #chronicpain. How do I know if my #pain is something different, or jz a normal part of my disorder? I don’t want to waste any #doctor’s time—or mine—if I’m just having a flare”: https://t.co/7fqauOzQgr @lindsayglenne #PainFlares #spoonies
— A Chronic Voice (@AChVoice) June 24, 2019
[Archives] "All of these #moments in life are gems covered in dirt. Buried truths left to rot, but germinate and blossom instead with a sprinkle of love and kindness": https://t.co/FcwFDEcfgp #bekind #mentalhealth #chroniclife #selfcare
— A Chronic Voice (@AChVoice) June 20, 2019
[New Post] “Having someone to talk to or crack #morbidjokes with always helps as well. I love morbid jokes, it helps me to cope. It’s like telling a painful #truth, but with defiance painted all over it”: https://t.co/1CkEGzmEM3 #ChronicIllness #MentalHealth #PainManagement
— A Chronic Voice (@AChVoice) June 25, 2019
“At first your #friends & #family are okay w this – ‘yr #health is important’, ‘I understand, yr sick’. But the longer you are ill, the less understanding some of those in your life become – ‘you're still sick?’”: https://t.co/OJROmYjHcI @loslittlelife #loneliness #ChronicLife
— A Chronic Voice (@AChVoice) June 21, 2019
“All I know for sure now is that if I get worse now or in the future..I know to get help. I know that there is nothing wrong w getting help. I know there is nothing to be ashamed of”: https://t.co/kMIwhQbypg @Nikki_Albert #stigma #ChronicPain #depression #awareness #MentalHealth
— A Chronic Voice (@AChVoice) June 21, 2019
“I hope that through sharing my personal experience I can show just how much even mild #chronicillness can affect a person’s life” – come join us in the #DayInTheLife #Linkup too 🙂 https://t.co/KSzx4q5bBX #spoonie #teenager
— A Chronic Voice (@AChVoice) June 22, 2019
“Everyone is different but find something that works for you. Say it out loud to yourself..#write letters or poems, express it in online #supportgroups..Find some way of channelling how you’re feeling”: https://t.co/9RYpd1lOj4 @_what_a_pain #grief #ChronicIllness #MentalHealth
— A Chronic Voice (@AChVoice) June 21, 2019
“P.s. There’s more than enough space out there for us all”: https://t.co/Yqzkz6HlLY #selfworth #selfawareness #mentalillness #depression #positiveaffirmations pic.twitter.com/uiATlpxYLE
— A Chronic Voice (@AChVoice) June 23, 2019
“There are no equipment or furniture you need to shift with your arms when you use #speechRecognition…I can now complete tasks even when #bedridden by #painFlares for several days": https://t.co/FIHASCCGih @rver0 #disabled #ChronicIllness
— A Chronic Voice (@AChVoice) June 26, 2019
“#Acceptance isn’t giving up. It’s not saying that you’re not going to fight anymore. The difference is that you’re not going to fight *yourself* anymore”: https://t.co/EUD8FVstvy @HopeReclaiming #ChronicPain #MentalHealth #ChronicIllness #LifeLessons
— A Chronic Voice (@AChVoice) June 27, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: Is Seeking Help for Your Mental Health Worth the Fuss?
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