Friday, 09 July 2019. Issue #170.
In this issue: Help wanted – pick your favourite chronic illness slogans! There is no other way but to work towards our future slowly, for those of us living with chronic illnesses. ‘I believe you’ are powerful words, especially when many of your friends with chronic pain are often told they are faking or exaggerating it. Which part of living with chronic illness, unrelated to the pain itself, gets you down the most? – Help fill in this form thank you! A book review on ‘Hypermobility Without Tears’, written by a movement therapist who has EDS herself. Turning 50 with chronic illness, and buying a paddleboard as a gift to try for the first time! Things not to say to your friends with chronic illnesses, keep checking in on them, and we truly appreciate you for it! It’s easy to lose hope and forgo your passions when you’re in constant pain, but it’s important to keep those small flames of life alight. Wearing a bra can be painful for many women who live with chronic pain, and recommendations for alternatives. Grief at its most fundamental is about loss, and being diagnosed with chronic illness is a huge loss.
I Need Your Help! – Can you select a few of your favourite slogans/taglines related to #chronicillness here? Thank you so much! š https://t.co/fr9BYik6SF #community #InvisibleIllness #ChronicPain #support
— A Chronic Voice (@AChVoice) July 17, 2019
"We need to keep working on our #future, bit by bit, brick by brick. There is no other way, especially not for those of us who are already slower to begin with": https://t.co/q2LQ6M46My #selfbelief #spoonies #chroniclife #chronicpain
— A Chronic Voice (@AChVoice) July 14, 2019
"'#IBelieveYou' are extremely powerful #words, esp as many people w chronic ill-health are often told they are faking, or exaggerating their #illnessā: https://t.co/GUtNyls7ew @JourneyFog #WritingPrompts #friendship
— A Chronic Voice (@AChVoice) July 17, 2019
"Which part of living with #chronicillness – unrelated to the the #pain itself – gets you down the most?" – I recently ran this #Twitterpoll & would like to consolidate them into a blog post. You can contribute here! https://t.co/dK71QoFeqX #spoonies #ChronicLife
— A Chronic Voice (@AChVoice) July 13, 2019
āIāve been watching Jeannieās presentations for years along with other #fitness experts in #EDS and I STILL learned quite a lot from #Hypermobility Without Tearsā: https://t.co/ngSwErjSqa @caplestrange #ChronicIllness #BookReview
— A Chronic Voice (@AChVoice) July 12, 2019
āIām turning 50 very soon & I bought myself a Stand Up Paddleboard or a SUP. This weekend will be my 1st time trying it out. I only expect to sit on my tush for a while until I get my arm strength backā: https://t.co/8vlOZJPEtA @mini2z #SelfCare #spoonie #ChronicLife #ChronicPain
— A Chronic Voice (@AChVoice) July 13, 2019
"Please remember to give your #friends in #chronicpain some grace, trust that they are doing their best, and keep checking in on them. We love and appreciate you for it!": https://t.co/RrDMFrrCav @PainResource #InvisibleIllness #MentalIllness #BeKind
— A Chronic Voice (@AChVoice) July 14, 2019
[Updated Post] " Itās easy to lose #hope and forgo your passions when youāre in constant pain. Yet itās important to keep these small flames alight as best as you can": https://t.co/RpW0mf15Yg @CaroleConnects #MondayBlogs #ChronicLife #spoonies #ChronicPain
— A Chronic Voice (@AChVoice) July 14, 2019
āIf you live with #chronicpain or a #chronicillness, wearing a #bra might hurt or negatively affect you…..whatever the reason is for you, your experiences are validā: https://t.co/N884z0pkgL @TheMightySite #WomensHealth #PainRelief
— A Chronic Voice (@AChVoice) July 16, 2019
ā#Grief is about #loss, and anyone dealing with any kind of loss. That being said #Chronicillness causes a lot of lossā: https://t.co/dnRZqDFWnn @worldseesnormal #spoonies #society
— A Chronic Voice (@AChVoice) July 16, 2019
*Note: This article is meant for educational purposes, and is based on each personās individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: 7 Ways to Be a Better Friend to Someone with a Chronic Illness (and 3 Things You Should Never Do)
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