Friday, 26 July 2019. Issue #171.
In this issue: The fears of severe medication withdrawals. Try not to dwell on your problems too much and let someone know if you need help, if you suffer from chronic pain or illness. Having a partner with chronic illness will probably mean a more difficult life, but for some this is a non-issue. People with chronic pain often have such levels of pain it is unbelievable, and uncontainable by a simple pain scale. Sitting down to analyse new symptoms, a familiar process for spoonies who have become well acquainted with how their bodies behave. The endless promos in mainstream media for health and fitness, yet neglects those whose health don’t allow them to achieve such goals. Re-making memories into something beautiful, instead of fearing the unpredictability of bad things happening again. Accessibility does not end at ramps for wheelchairs; the suggestions from disabled people need to be taken into account for real, effective change to happen. Some cheery highlights from the #JoyInSummer hashtag. The less oxygen you give to your dark moments, the weaker they will get; do not react spontaneously to them.
“1 of my major #fears for even starting a med like #Cymbalta were all the stories of #withdrawal symptoms. 1 friend told me abt her mom's experience after taking it for 2 yrs that ended up being so bad..gave up & went back on it”:https://t.co/jzrRlRjLJw #duloxetine #fibromyalgia
— A Chronic Voice (@AChVoice) July 20, 2019
"If you’re struggling with #MS, #chronicpain or any other #illness, my best advice is to avoid dwelling on your problems. If you need help with this, let someone know": https://t.co/aPsTn3OeT2 #selfcare #spoonie
— A Chronic Voice (@AChVoice) July 22, 2019
"He has seen me at my worst, yet never once treated me as a lesser #human being. I knew for sure that life would never be easy with me, yet it was a non-issue to him": https://t.co/vSXtOn8LDi #RelationshipGoals #LifeLessons #ChronicIllness #spoonies
— A Chronic Voice (@AChVoice) July 19, 2019
“People w #chronicpain have a higher #tolerance for #pain because often times we have to & if I told you my real pain levels u probably wouldn’t believe me! Is my pain really that bad or am I just exaggerating?”: https://t.co/uGoCH1tx2N @sarahlynn358 #InvisibleIllness #heathcare
— A Chronic Voice (@AChVoice) July 24, 2019
"So I sat down at home to analyse the pain & situation I was in. After living with #chronicillnesses for some time, you become somewhat familiar as to how your body reacts to your #diseases": https://t.co/yOpBskHfh5 #prompts #PainManagement #ChronicPain
— A Chronic Voice (@AChVoice) July 24, 2019
“Then there’s the endless #exercise promos. While I used to love (crave, even) to exercise, any attempt to do so will cause me to relapse and experience an extreme flare up in my symptoms": https://t.co/frnzclqd7H @lisaalioto #pwME #MECFS #ChronicLife #SpoonieProblems
— A Chronic Voice (@AChVoice) July 20, 2019
“Living with a #chronicillness makes it difficult to know what can happen next. My brain functions differently and doesn’t always read messages in the right way”: https://t.co/an6wFwYbPo @charliew82 #ChronicLife #SpoonieTravels #FND #holiday
— A Chronic Voice (@AChVoice) July 22, 2019
"#Accessibility does not end at ramps and is a real problem for a lot of #disabled people and the only way that will change is if you start listening to suggestions of disabled people": https://t.co/bItVj7RQHf @sarahlynn358 #disability #society #awareness
— A Chronic Voice (@AChVoice) July 21, 2019
“I’ve been enjoying sharing some of my #joyinsummer photos on social media, and I’m loving seeing all of yours too! Please do keep them coming! They’re so cheery to see”: https://t.co/MJs73CLwEe @Not_Just_Tired #summer #Spoonies #wellbeing #ChronicLife
— A Chronic Voice (@AChVoice) July 19, 2019
“When the dark moments come, because they will, do not act on them. No knee-jerk reaction you may #regret. The less you fight the #darkness, and the less oxygen you give it, the weaker it will get”: https://t.co/8nLcTEk9Fy @KarinSieger #PainManagement #MentalHealth #depression
— A Chronic Voice (@AChVoice) July 19, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: Tips & Tools to Help Regain Independence with a Disability or Chronic Illness
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