Friday, 17 August 2019. Issue #174.
In this issue: Chronic pain is a suicide risk that is too often ignored. Trying to socialise with chronic illness takes a lot of effort, just getting to the event in itself is exhausting. Whilst chronic illness is hardly funny, sometimes we just need to laugh at ourselves. The need to portray ME/CFS in a realistic light in the media; there is no cure for it yet. Acceptance of the slow life with chronic illness. The pain and worry caregivers often feel, seeing their loved ones in pain. Overdoing it with chronic illness usually equals to more recovery time and thus, less time to do more things. We are part of and belong to this world. Looking your best and flourishing with chronic illness. Being part of a community of like-minded people can make all the difference.
“Unmanaged #chronicpain is a #suicide risk. We all said so. Not a one person listened to us”: https://t.co/m6TKvV8mnN @nikki_albert #PainManagement #healthcare #ChronicIllness
— A Chronic Voice (@AChVoice) August 15, 2019
"Trying to socialise with #friends or #family becomes a huge activity & every #moment has to be planned & paced..by the time you're at the #social event, you feel like you're running on empty & don't have much more to give”: https://t.co/OJROmYBi4g @loslittlelife #SpoonieProblems
— A Chronic Voice (@AChVoice) August 13, 2019
“#Chronicillness is no joke, but that doesn’t mean we can’t have some fun part of the time. Some days we just need to laugh out ourselves”: https://t.co/6DNKdfqelc @mental_olympian #SpoonieProblems #ChronicIllnessMemes #ChronicLife #ChronicPain
— A Chronic Voice (@AChVoice) August 10, 2019
“We also need to make sure ME is seen in a realistic light in the #media & sadly #journalists often publicise stories of #remission as #cures. There is no cure for ME (yet) and I have been very careful not to use this term in my post”: https://t.co/pfo0hdCRkx @JourneyFog #mecfs
— A Chronic Voice (@AChVoice) August 10, 2019
“I have two speeds – #slow or very slow. I know that I’m simply not fit for a different type of #lifestyle. I accept that I need to live my life in the slow lane”: https://t.co/WwI8YGkjKZ @DespitePainBlog #ChronicLife #SelfAwareness #spoonie
— A Chronic Voice (@AChVoice) August 12, 2019
“This reality is so often written all over my #husband’s face. He feels shattered. Exhausted. Worried. He’s #hurting too! My pain is his pain”: https://t.co/u03ItYSbSw @My_medmusings #caregivers #ChronicPain #ChronicIllness
— A Chronic Voice (@AChVoice) August 11, 2019
“Typically, overdoing it with a #chronicillness results in less time to do more because of the time needed to #recover”: https://t.co/deT6ZXkPKt @TheDisabledDiva #PainManagement #SelfCare #spoonie
— A Chronic Voice (@AChVoice) August 11, 2019
“We are indeed a part of the world, and a speck in space and time. We are who we are; our #beauty is inherited from nature herself. We belong, and are in #harmony”: https://t.co/R8RQiz9Pn9 #totd #inspiration #spoonies pic.twitter.com/50is460jO9
— A Chronic Voice (@AChVoice) August 13, 2019
“Like am I suppose to walk around looking like shit because I feel like shit?…Am I not suppose to put on makeup, wear nice clothes, look presentable in spite of everything?”: https://t.co/jEWETwoepj @ashleysanatomy #spoonie #thrive #ChronicLife #wellbeing #SelfCare
— A Chronic Voice (@AChVoice) August 12, 2019
“Being part of something with like-minded people and people who really get you can make all the difference, during both the good times and the times when you’re out of spoons”: https://t.co/E3VZSsWlWR @motivatedmvmnt #community #support #spoonies #StrongerTogether #ChronicIllness
— A Chronic Voice (@AChVoice) August 12, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: Why it Feels Like Suicide is Always an Option
If you liked this article, sign up for our mailing list here so you don’t miss out on our latest posts. You will also receive an e-book full of uplifting messages, quotes and illustrations, as a token of appreciation!
