Friday, 23 August 2019. Issue #175.
In this issue: Making it through to the next day counts for a lot. You may have all the motivation in the world, but be trapped in a body that isn’t able. The importance of ‘community’ and finding your tribe. The power of collective knowledge, with doctors and patients all working together. The reality of dating with chronic illness, when a cute guy finds out what’s beneath the cute girl they matched with. Having a good meal with a friend made whilst we were both hospitalised. The careful calculations and decisions people with chronic illnesses need to make, based on their energy levels every day. Able bodied people need to be educated on why disabled people need the space and facilities in toilets. The peace of mind that acceptance brings, and possibilities it opens up again. Laughing at ourselves and our pain can be difficult, but is a kind of humour many of us have developed to cope over the years.
“In fact, that counts for a lot ♥️”: https://t.co/tfr3pIvuJd #reminder #Inspiration #spoonies #chronicLife #SelfLove pic.twitter.com/yKaJPtGLZc
— A Chronic Voice (@AChVoice) August 18, 2019
“They assume I lack the #motivation to just ‘push through’ the pain and exhaustion. The truth is; I have all the motivation in the world, but I live in a body that is not able": https://t.co/0M7AbXzAiI @JourneyFog #ChronicPain #WritingPrompts #spoonie #ChronicFatigue
— A Chronic Voice (@AChVoice) August 22, 2019
[New Post] "#Community is an impt aspect of being #human. We were made to be social, to communicate & to form #connections, whether you’re an introvert or extrovert. In modern terms, this is also known as ‘finding your tribe’": https://t.co/oLJnOji4JL #spoonies #StrongerTogether
— A Chronic Voice (@AChVoice) August 18, 2019
"#Chronicillnesses tend to span across various #medical departments. This makes the patient-doctor & #doctor-doctor #collaboration crucial. Collective #knowledge is power, and I hope that some of the experiential data here will be useful": https://t.co/wl9fCMYXxQ
— A Chronic Voice (@AChVoice) August 20, 2019
“I can’t count how many times a cute guy seems very interested in me until he finds out that what’s hidden behind the fit tattooed redhead is a #chronicillness he can’t possibly understand”: https://t.co/6Vx7I5R8rR @creakyjoints @chroniceileen #RA #dating #society #relationships
— A Chronic Voice (@AChVoice) August 15, 2019
“A #friend I made in #hospital a year or two ago…she was in the bed next to mine and I passed her my namecard 😛 Love her morbid sense of humour and she knows more secret #food places than I do around the hospital, even though she has #Crohns 😛”: https://t.co/NdLayqUykj #lupus pic.twitter.com/S8Wi2T6MOy
— A Chronic Voice (@AChVoice) August 19, 2019
“We spend every single day of our lives making #decisions on what we are able to use our #energy on that day. Every single interaction takes from the very limited amount of energy we have”: https://t.co/ikmeVprfP1 #ChronicLife #ChronicIllness #awareness
— A Chronic Voice (@AChVoice) August 20, 2019
“the #abled don’t understand, nor are they educated, why we need these #toilets built in a particular way. I feel they think it is a luxury to have a spacious, isolated place to eliminate bodily waste”: https://t.co/btREMYvyTp @A30MinuteLife #DisabledToilet #awareness #disability
— A Chronic Voice (@AChVoice) August 20, 2019
“Learning to accept the way things were brought me #peaceofmind. It allowed me to find ways to live well within my #capabilities”: https://t.co/ZYRLXPlf8N @Not_Just_Tired #acceptance #pwme #ChronicIllness
— A Chronic Voice (@AChVoice) August 22, 2019
“Many of us have developed somewhat warped senses of humor over the years, which can make #laughing at ourselves possible; it is never an easy choice though”: https://t.co/Ww0yA1wEsu @MigraineMantras #SenseOfHumor #ChronicLife #ChronicIllness #spoonies
— A Chronic Voice (@AChVoice) August 16, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: Would You Date a Person with Chronic Illness?
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