NOVEMBER WEEK 3
In Issue #188: Chronic illness is exhausting, even if you’re an optimist. Keeping stress at a minimal level in order to cope with chronic pain. Taking your unwanted identity as a sick person, and transforming it into something useful. An interesting variety of supplement recommendations for chronic pain and fatigue. Be aware that certain products can be physically harmful to people with medical conditions. Invisible pain is real, and leads to mental torment when it becomes unbearable. The struggles with poverty and the Social Security Disability Insurance (SSDI) in the USA. The unfound fear that many people with chronic illness have, when sharing a good day on social media. Finding new things that we can do and new ways to support our loved ones, despite chronic pain. When chronic illness becomes the norm, and you forget what it’s like to be healthy anymore.
“I try my best to be positive, I’m a born #optimist. But sometimes I don’t have the energy or will to look on the bright side. I’ve had to fight so hard in my life and it’s bloody exhausting”: https://t.co/2GNgx7jfeX @JourneyFog #depression #MentalHealth #ChronicPain #positivity
— A Chronic Voice (@AChVoice) November 15, 2019
"Keeping #stress levels to a minimum, as that’s my biggest trigger for #flareups. Otherwise, high dose steroids are the only thing that’s able to control the pain (although this comes at a mental cost)": https://t.co/Orf2JdL7J1 #MondayBlogs #MentalHealth #ChronicIllness
— A Chronic Voice (@AChVoice) November 18, 2019
"Isn’t it amazing how you can be so #useful even though you might not have been able to get out of bed…You can take that unwanted #identity & transform it into a lighthouse for those who are #suffering": https://t.co/uiOBtQQNFH #StrongerTogether #ChronicPain
— A Chronic Voice (@AChVoice) November 17, 2019
“I reached out to my followers to ask what #supplements they find help ease their #pain and #fatigue. The responses were really interesting, and there were a few ideas I hadn’t heard of before”: https://t.co/OuIf0xEGYv @JourneyFog #PainRelief #ChronicIllness
— A Chronic Voice (@AChVoice) November 20, 2019
[New Post] "Certain products can..b physically harmful or triggering for people w various #medical conditions..some of my fav #presents to receive, but people u shd never, ever give them to. Not even to ‘try out a little bit & see’": https://t.co/E3QEYVie4s #ChronicIllness #gifts
— A Chronic Voice (@AChVoice) November 17, 2019
“To downplay some1 else’s #pain cos u..can’t see the physical damage..doesnt mean their pain's exaggerated. When the pain becomes too much it's nt only a physical torment it then becomes a mental torment": https://t.co/hoPZu45yBi #ChronicPain #awareness #empathy #InvisibleIllness
— A Chronic Voice (@AChVoice) November 15, 2019
“It took two years, but I was finally awarded #SocialSecurity #Disability #Insurance. The problem: My payments were $970 a month and my rent was $800": https://t.co/6ar39KkMhD @businessinsider @BeingCharisBlog #SSDI #USA
— A Chronic Voice (@AChVoice) November 17, 2019
“many of us are on #socialmedia to raise #awareness of our #chronicillnesses, and so we may worry that sharing a good moment can undo all of that by not reflecting the #reality”: https://t.co/aOC4GWToWC @Not_Just_Tired #InvisibleIllness
— A Chronic Voice (@AChVoice) November 19, 2019
“Find other things that you #canDo. #Pain may prevent us from doing some of the things we used to do, but we can find other ways to help out or #support those we love”: https://t.co/fXU5mZUuMT @HopeReclaiming #SelfAwareness #ChronicLife
— A Chronic Voice (@AChVoice) November 14, 2019
“#ChronicIllness..becomes the norm and before you know it you can no longer remember how it feels to be well. But then something new pops up..before you realise it there is a new norm to get used to": https://t.co/hWnrfQIu45 @bloomingmindxx #NewNormal #ChronicLife #spoonie
— A Chronic Voice (@AChVoice) November 17, 2019
NOVEMBER WEEK 4
In Issue #189: Trying to keep your head above water with suicide ideation. It’s okay to take some time off to grieve, and feel sorry for yourself sometimes. The exertion of taking a shower with ME/CFS, where the pain flare hits only 48 hours later. The unfair judgment of using plastic straws due to chronic pain or disability. Retiring early due to medical reasons is not as fun as you think it is. On top of dealing with the usual mix of adulthood, those with chronic illness also need to worry about pain, fatigue, medical appointments and more. Great gifts and fantastic sponsors in this year’s Grand Christmas Giveaway on A Chronic Voice! One of the best decisions ever as a young adult – embracing mobility aids. How getting a more active dog has helped to improve fitness and mental health of one spoonie. Chronic pain goes beyond physical pain, and affects you as an entire person.
“For now, I can and want to keep my head above water. But will is never enough, and so I have learned to surround myself with ways to stay afloat”: https://t.co/G29U9cFDUl @THEOUTLINE @annabroges #MentalHealth #depression #anxiety #ChronicLife #spoonies
— A Chronic Voice (@AChVoice) November 26, 2019
“If you need to take a day to feel sorry for yourself, do it. Sometimes we need to #grieve what we feel we’ve lost, and that’s okay”: https://t.co/dAsj8AGVq7 @HopeReclaiming #spoonies #fibromyalgia #ChronicPain #MentalHealth
— A Chronic Voice (@AChVoice) November 21, 2019
"I wait days between #bathing – most commonly a whole week, but when I was less severely ill I would skip just three days as my worst #flare symptoms arrive 48 hours after the exertion": https://t.co/9KyWDjBuL5 @chronic_hopeful #SpoonieProblems #ChronicLife #SelfCare
— A Chronic Voice (@AChVoice) November 23, 2019
“#Disabled people should not have to beg for the use of something that is vital to their everyday life. And they shd not have to live in #fear of the backlash they receive just from asking for a disposable #plastic straw": https://t.co/HRA7Ik1moU @JourneyFog #society #awareness
— A Chronic Voice (@AChVoice) November 26, 2019
"While #retiring early may sound grand, it’s not. You lose out on precious time out of the house, adult conversation and your own #income”: https://t.co/BwQjSb0M94 @worldseesnormal #ChronicPain #awareness #society
— A Chronic Voice (@AChVoice) November 23, 2019
“In addition to all the regular #challenges that are part of #adulthood, we also have to worry about pain, fatigue, nausea, migraines, physical limitations, #brainfog, sleep difficulties, medications, a ton of appointments”: https://t.co/ikmeVprfP1 #ChronicPain #society
— A Chronic Voice (@AChVoice) November 25, 2019
[New] "We have a few generous #sponsors for this year’s grand #giveaway on #AChronicVoice! These are fantastic products for people w chronic or #mentalillness..but would make great #gifts for healthy people, too!": https://t.co/bQdz1XvLcP #ChronicIllness
— A Chronic Voice (@AChVoice) November 26, 2019
“Embracing #mobilityaids as a #chronicallyill young person is one of the best #decisions I ever made”: https://t.co/TLZeEXyIWf @lifeofpippa_ #QualityOfLife #YoungAdults
— A Chronic Voice (@AChVoice) November 27, 2019
“I think getting a more active #dog has been such a blessing for me, I was not pushing myself and it was really affecting my #mentalhealth”: https://t.co/RV86AlsKrO @bloomingmindxx #ChonicLife #walks #spoonie
— A Chronic Voice (@AChVoice) November 25, 2019
“wish people know that #chronicpain affects all aspects of life. That it is more than just the #pain itself”: https://t.co/lsV7lmUxwg @TherapyImagine @Nikki_Albert #qualityoflife #wellbeing #awareness
— A Chronic Voice (@AChVoice) November 24, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: Important Holiday Checklists for Those with Chronic Illness & Their Supporters
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