Friday, 03 January 2019. Issue #194.
In this issue: Chronic fatigue – compared to pain – can be unfathomable as most people have never experienced it to such a debilitating extent. The link between chronic pain and psychological issues, which is obvious yet some research find ‘weird’. Writing to encourage empathy and to reduce ignorance. The exhaustion from trying to be good at self-care in order to feel ‘worthy’ of compassion. Autoimmune disorders are difficult to pin down, so even the best primary care physicians can struggle with diagnosing them. The pain of Trigeminal Neuralgia, where not all treatments and medications work for everyone. Clinical trials for a seaweed-based drug to improve cognitive function in Alzheimer’s. Invisible disabilities are real even if you can’t see them, and a video feature of spoonies. The differences between passive and active suicidal thoughts. Patience is required during the often slow healing process, but which is beneficial in the long term.
“I think #fatigue is harder for #healthy people to understand than #pain because everyone has felt pain at some point in their lives..can’t wrap their heads around what it feels like to be exhausted even after 12 hours of sleep": https://t.co/ikmeVprfP1 #ChronicFatigue #spoonies
— A Chronic Voice (@AChVoice) January 1, 2020
“I am flabbergasted that these studies seem to find this link weird. How long do you think one can have #chronicpain without #psychological consequences?”: https://t.co/oibrAJiZEP @Nikki_Albert #MedicalResearch #ChronicIllness #MentalHealth
— A Chronic Voice (@AChVoice) December 28, 2019
"We need to write to encourage thought and #empathy for everyone around us, and to learn to make less ignorant #judgments": https://t.co/BJpG2oE5B1 #ChronicIllness #writing #SpoonieBloggers
— A Chronic Voice (@AChVoice) December 29, 2019
“Maybe you are tired of performing #selfcare so that the people around you believe that you deserve their #support. Maybe you believe that you have to be the perfect patient all the time in order to be #worthy of #compassion": https://t.co/vATYGbaL0U @bennessb #ChronicIllness
— A Chronic Voice (@AChVoice) December 26, 2019
“That’s because even the most caring, competent, #primarycare #physicians aren’t well-equipped for the detective work needed to pin down an elusive #autoimmunedisorder”: https://t.co/7eS6xi0wQk @elemental #autoimmune #ChronicIllness
— A Chronic Voice (@AChVoice) December 29, 2019
“There are #treatments & #medication for #trigeminalneuralgia, but they often come w problems & they do not help everyone. Some treatments won’t work at all for some people & many people can’t take the recommended medication": https://t.co/w7OjZbzrCv @DespitePainBlog #ChronicPain
— A Chronic Voice (@AChVoice) December 27, 2019
“Conducted on 818 #patients, the trial found that #Oligomannate — which is derived from brown #algae — can statistically improve #cognitive function among people with #Alzheimers in as little as four weeks”: https://t.co/R1u5TW2s2n @CNN #ClinicalTrial
— A Chronic Voice (@AChVoice) December 29, 2019
"I Am Invisible No More: Invisible #disabilities and #illnesses are real, even when you can't see them. #BeKind": https://t.co/k31NhJhAjL @livingwithRA #InvisibleIllness #awareness
— A Chronic Voice (@AChVoice) January 2, 2020
“What does the term passively #suicidal mean? What’s the difference between being active and passive? What are the signs and how can you help yourself?”: https://t.co/0CYb5wkzOY @nyxiesnook #SuicidePrevention #PassiveSuicidal #awareness #drepression
— A Chronic Voice (@AChVoice) December 30, 2019
“I need to be patient with the #healing process, as this can only be beneficial in the long run, and is how better days are ushered in”: https://t.co/g4ghmENrrj #baddays #chroniclife #selfawareness #chronicpain
— A Chronic Voice (@AChVoice) December 30, 2019
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: The Power and Purpose of Blogging, and Why You Should Write
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