What is the Chronic Illness Social Pod For?
So I finally set up the social media engagement pod I’ve been talking about! It wasn’t so difficult, but kind of tedious at the same time. I had discovered (after all these years, I know right?) similar pages on Facebook a month or two ago, and have found them helpful when used correctly.
One major point that bugged me however, was that a lot of the content was about the usual topics online – finances, fitness (not in a chronic illness sense), parenting, self-care (once again not in a chronic illness sense), make-up, fashion, travel, and a shitton of recipes (nothing against delicious food but yes, a whole lot!).
How Does This Impact Online Advocacy?
What this means, is that there’s a lot of access and promotion for such topics on social media. That’s understandable, as they’re appealing to us as human beings and will always be in demand. Who doesn’t like some entertainment or self-improvement?
Chronic and mental illnesses on the other hand, are dreary, godawful topics that we’d like to avoid as much as possible. No need to think about them until necessary *touch wood*! This makes raising awareness about chronic and mental illnesses online tougher.
Why I Set Up the Chronic Illness Social Pod
I felt like there was a huge gap and need for a separate group, specifically for our very niche niche. A group where people with chronic illnesses could interact and support each other, and at the same time grow their social media accounts in order to raise more awareness. Kind of a little infiltration into the social media space; a bit more reach into that black, mysterious hole called SEO.
Many of these social share groups also require total participation in all threads. For example, if a thread that you’ve participated in has 100 pins, then you need to repin all of them in reciprocation. I don’t see how this is helpful for anyone.
Pinning irrelevant pins to your account not only floods your feed with unwanted information, it also hurts your SEO. It might also make you lose credibility with your audience. This is applicable to all social media channels where you choose to reshare posts. Do you see where I’m going?
How Do I Participate in the Chronic Illness Social Pod?
I have made participation as accessible as I can for those with chronic and mental illnesses. (Feel free to let me know if you have better ideas anytime though!) None of the threads are too demanding, and only require you to share a certain number of posts that fit your niche and beliefs.
Think of the Chronic Illness Social Pod as an online spoonie bar, where everyone can go to get the latest news around town. Share your ‘best of’ or ‘please look at this’ posts there, so everyone can view them altogether, and help to spread the word.
Pin to Your Chronic Illness & Mental Health Boards:
Whilst you are expected to finish threads on time, they have a wide time margin and shouldn’t be too difficult to accomplish. You can always let me know if you’re unable to finish a thread on time for any valid reason, too. They also run every other day, so if you don’t feel well today, just rest up and participate any other day!
These threads currently include blog SEO and comments, Twitter, Instagram, Facebook and Pinterest channels. Let’s ease into it together, and work as a team. We’re all chronically ill, so let’s do this our way – well paced with a lot of margin.
So that’s a little introduction to the Chronic Illness Social Pod. If you have more questions, feel free to ask in the comments below. I hope to see you there with everyone else soon!
I now have three lovely moderators who help me run the group to ensure that everything is going smoothly! I knew that I couldn’t do it all alone, and these lovely ladies not only stepped up to the plate, but have become very dear online friends to me.
They have supported me through panic attacks, pain flares, and we all try to do the same for each other. I really think that the involvement in this FB group has brought about more benefits than I had initially envisioned 🙂 Give them a read and follow here:
- Claire JG of ‘Through the Fibro Fog’
- Katie Clark of ‘PainFully Living’
- Shruti Chopra of ‘All Things Endometriosis’
*Note: This article is meant for educational purposes and is based on the author’s personal experiences. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding any new treatment protocols.
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