Friday, 24 January 2019. Issue #197.
In this issue: Surrounding yourself with comforting and supportive resources when you’re recovering from a pain flare. A book that encapsulates all that goes on when you’re both chronically ill, and also a caregiver to children with special needs and chronic illnesses. The bane of invisible illness is that your pain cannot be seen, yet at the same time I’m glad that my appearances don’t reflect it. The need for a social media growth support group for our very niche niche. In order to prevent a pain flare triggered by hypersensitivity, those with ME/CFS and the chronically ill struggle with isolation a lot of the time. You’re allowed to feel upset when you’re in a crisis, and no one should try to override it with toxic positivity. It takes a lot of time for the chronically ill to prepare to look ‘normal’. Chronic pain is like a memory, an injury that your brain remembers even if it isn’t there any longer. Be kind always, for everyone is fighting a battle you know nothing about. Being able to walk 22,000 steps despite an injured knee, thanks to the use of a rollator.
"I allow myself to rest and retreat, and surround myself with comforting and supportive resources. These all help me to regenerate even better": https://t.co/0dMtF0ojRD #resilience #SelfCare #ChronicIllness #ChronicPain #PainRelief
— A Chronic Voice (@AChVoice) January 17, 2020
"It touches on a bit of everything that goes on in the #hospital. The frenzy in the emergency room, the intenseness of a surgery, the high-stress & heartbreaks in the NICU, stolen drugs by #doctors, interactions with #patients…": https://t.co/YRDL0dOIya #nurse #MondayBlogs
— A Chronic Voice (@AChVoice) January 20, 2020
"I am also glad that I actually don’t look #sick, despite this being the bane of #invisibleillnesses…I cannot imagine how I would look like if my internal problems were all manifested upon my physical form": https://t.co/hOz6p4bS42 #MentalIllness #ChronicPain #ChronicIllness
— A Chronic Voice (@AChVoice) January 18, 2020
"I felt like there was a huge gap & need..specifically for our very niche niche. A group where people w #chronicillnesses could interact & #support each other..grow their #socialmedia accounts in order to raise more #awareness": https://t.co/1uVoevSlhb #MondayBlogs
— A Chronic Voice (@AChVoice) January 21, 2020
“The only way to avoid this pain, and the scary symptoms that accompany #hypersensitivity, is to avoid contact with the stimulus that causes the harm – this is the isolating part": https://t.co/RrRUxIFKDl @JourneyFog #isolation #MECFS #pwme #ChronicPain
— A Chronic Voice (@AChVoice) January 19, 2020
“If I open up..don’t be so quick to cast out my darkness w blinding ultraviolet lights of #positivity. It’s annoying..Something really bad is happening to me & I’m allowed to feel negatively about it": https://t.co/d6bOuppsTl @msmoreal #ToxicPositivity #ChronicPain #MentalHealth
— A Chronic Voice (@AChVoice) January 19, 2020
“When u next look at someone w a chronic/#invisibleillness & think well they look OK just think for a min & consider how long they have taken to look OK cos believe me it’ll be a lot longer than u think”: https://t.co/m5JxGsIVV4 @accessiblerach #ChronicPain #awareness #spoonies
— A Chronic Voice (@AChVoice) January 18, 2020
“I posted this quote to remark on the fact #pain is like a #memory. Remember with #chronicpain there is no #injury left for the pain to be there usually. It is the #brain memory of the injury on repeat”: https://t.co/oibrAJiZEP @Nikki_Albert
— A Chronic Voice (@AChVoice) January 22, 2020
“Everyone you meet is fighting a battle you know nothing about. #BeKind. Always. And I mean that, and I try to live by it”: https://t.co/8NUIfdavhH @dsavannahcreate #humanity #spoonie #ChronicPain #ChronicLife
— A Chronic Voice (@AChVoice) January 21, 2020
“Even with an injured knee last week, I was able to clock 22,000 steps at #Disneyland and because of the relief I experienced when resting on my #rollator, I DID NOT end the day in pain”: https://t.co/SvpL9yTU4W @TheDisabledDiva #PainRelief #accessibility #disability
— A Chronic Voice (@AChVoice) January 20, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: How to Maximise Accessibility & Improve Your Quality of Life at Home
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