Friday, 07 February 2020. Issue #199.
In this issue: If chronic illness patients complain, please know that the pain is truly severe. The acute crises that come with chronic illness can be scary, but often it is the day to day living that wears a person down. Dear problem patients, I believe you no matter how strange your symptom may sound. We may fail on certain days, but we can still try to commit to being a kinder, better partner to our own selves, in order to live a rich, full life. It is not okay to give unsolicited advice – full stop. Seeing a 24 hour clinic is a good option if your pain is not too severe, as it helps ease the burden on everyone include your own. Self-care for those with chronic illness may look totally different from the norm. Wheelchair and mobility aid usage is not black and white. In my memories, often pain is erased, leaving only the residue of beauty. Being able to take showers 0.07% of the year, due to extreme chronic fatigue and pain.
“I don’t often #complain because if I complained every time I was in #pain, I would have nothing else to say. If I’m complaining, just know it must be really severe": https://t.co/aSY2BQxCd5 @TheMightySite #ChronicPain #awareness #humanity
— A Chronic Voice (@AChVoice) February 1, 2020
"Such #emergency episodes happen on a yearly..even weekly basis..& whilst these acute crisis are terrifying, it's often the daily attempts to try & live a decent life despite #pain that can really wear on a person": https://t.co/G6NVjgth8i #ChronicLife #ChronicPain #spoonies
— A Chronic Voice (@AChVoice) February 5, 2020
“Dear Problem #Patients: I want you to know that #Ibelieveyou. No matter what is going on with your body or how strange it sounds when you try to explain it, I want you to know that I believe you": https://t.co/vATYGbaL0U @bennessb #ChronicIllness #InvisibleIllness #spoonies
— A Chronic Voice (@AChVoice) February 2, 2020
"There will be days where we #fail, but we can try to commit ourselves to being a better partner every day. In that way, we can live a rich & full life, no matter the length or circumstance": https://t.co/T35UJbkNgU #commitment #relationship #MondayBlogs #ChronicLife
— A Chronic Voice (@AChVoice) February 3, 2020
“I remained polite at first, but after 5 separate cure suggestions for #depression, #fibromyalgia pain, acid reflux fr the same person, in the space of 20 mins, I felt compelled to confront them. This is not ok”: https://t.co/37cjFknMJB @JourneyFog #ChronicPain #advice #spoonies
— A Chronic Voice (@AChVoice) February 1, 2020
"P.s. If your #symptoms are not too severe, visiting a #24HourClinic might actually be a better option for everyone. Help to spread the queue out a little, & you also get to see a #doctor faster": https://t.co/rVKcNAEvwI #PainRelief #awareness
— A Chronic Voice (@AChVoice) February 3, 2020
“When you live with chronic ill-#health #selfcare can look very different to what’s often recommended – going for a walk or socialising with friends may not be possible”: https://t.co/2fL47QgaHa @JourneyFog #awareness #ChronicFatigue #ChronicPain
— A Chronic Voice (@AChVoice) February 3, 2020
"We also need to be aware that there are those with #chronicillnesses who may not be confined to a #wheelchair permanently, but need #mobilityaids on certain days…wheelchair usage isn’t black & white": https://t.co/hOz6p4bS42 #accessibility #mobility
— A Chronic Voice (@AChVoice) February 6, 2020
[New Post] "Somehow in my #memories, the pain during those moments have been erased, and only the treasures remain. They are beautiful #moments that my brain has chosen to tuck neatly into its folds; safe, sweet & sound": https://t.co/GarjjvKwm5 #prompts #ChronicLife #ChronicPain
— A Chronic Voice (@AChVoice) February 1, 2020
"as #embarrassing as it is to admit, it also really demonstrates how #sick I am! Because if I #shower or bathe, it takes all my energy..I averaged a shower every 13.5 days, a mere 0.07% days of the year”: https://t.co/r1YH1w3dm1 @dSavannahCreate #ChronicPain #ChronicIllness
— A Chronic Voice (@AChVoice) February 4, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
Read More: 11 Visible Evidence of a Body Gone Rogue
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