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Issue #208: The Hope That We Will Not be Forgotten After the COVID-19 Pandemic Ends & Using Nasty Experiences as Opportunities for Advocacy

Issue 208: The Hope That We Will Not be Forgotten After the COVID-19 Pandemic Ends & Using Nasty Experiences as Opportunities for Advocacy | A Chronic Voice

Friday, 10 April 2020. Issue #208.

In this issue: Using nasty experiences as an opportunity to turn the tables for advocacy purposes. The ableism that is rampant in the workplace and society, as accommodations can clearly be made as seen in this pandemic, but aren’t. Chronic pain doesn’t give you a break; it trails along even on holidays, and many are driven to suicidal thoughts. It only makes sense that those with chronic illness and disabilities are a little bitter about the current COVID-19 accommodations, as they are things that we’ve been asking for for ages but have received little support. Medical gaslighting has been around for centuries, especially for women who are deemed ‘hysterical’ and ‘mental’ by a mainly male dominated medical field. A physical therapist with over 25 years of experience, whose aim is to help those with chronic pain and disability regain their quality of life. When your ‘luck’ consists of catching tuberculosis, dengue fever and more from off the streets. The confusion that comes after dissociation, where you need to poke yourself just to know you exist for real. The positive upside to the COVID-19 situation – more patients are speaking up, and now is the time to share our self-care experiences and expertise. The hope that after the coronavirus pandemic ends, that society at large will remember those of us whose lives are still constrained by chronic pain and illness.

*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.

Read More: Sometimes, Physical Pain Isn’t the Worst Part About Chronic Illness

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Issue 208: The Hope That We Will Not be Forgotten After the COVID-19 Pandemic Ends & Using Nasty Experiences as Opportunities for Advocacy | A Chronic Voice

3 comments

  • I like your blog sooo much. I am a health blogger, M.S patient who knows how it is like to be strained with your illness.
    Keep up your work

  • What a great collection of thoughtful and thought-provoking Tweets! This is such a strange experience for all. It is surreal to hear “normal” healthy people complaining about isolation and lack of social interaction when we deal with it every day!

    Thanks for pulling all these together into one place!

    Sue

    Finding a New Normal: Living Your Best Life with Chronic Illness

    • Thanks, Sue! I love compiling these on a weekly basis…I find it relaxing lol, and also interesting to see what’s tops each week…can be surprising! Yes I’m actually a little annoyed with the complaints because it’s nothing, seriously. If they are well and healthy at home, it’s great. I might just write a post about it soon… :p Sending love and take care!

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