Friday, 15 May 2020. Issue #213.
In this issue: To live with chronic illness is to live with unpredictability, and is a life lesson many of us have had to learn early the hard way. The damaging mental effects of steroids that are often ignored, with physical symptoms taken more seriously. Linkup resources you can participate in, where you can write a monthly or evergreen post as you wish. Intense pain in this very a can be all that matters, and can be enough to break a person. M.E. varies from each patient but 25% of sufferers are bed or home bound. The link between migraines and fibromyalgia, which are both neurological diseases that cause sensory overload that feed off each other. It’s heartbreaking when your child cries you to you in pain, yet there’s nothing you can do to help them. Your life story and pain matter, and doesn’t need need to have a neat and tidy ending. How to communicate your pain clearly to your doctors, so that they can better understand and assess it. It’s okay to be in survival mode; things will not always be this way.
[New Post]"It’s a #lifelesson many of us with #chronicillnesses have had to learn early the hard way, as living with #chronicillness is basically living with #unpredictability as a constant companion": https://t.co/joSvG9FUbc #WritingCommunity
— A Chronic Voice (@AChVoice) May 8, 2020
"I was a #teenager when I had my first taste of #steroids. Everyone around me was so focussed on the physical aspects of my disease, that the emotional wreckage brought about was brushed aside as unimportant": https://t.co/lSs9buFH9c #ChronicPain #MentalHealth #spoonie
— A Chronic Voice (@AChVoice) May 9, 2020
"Whilst you may break them down for reflection prompt by prompt, many people also write #evergreen posts that combine these #prompts": https://t.co/hhLg45DLKi #ChronicPain #SelfAwareness #Spoonies
— A Chronic Voice (@AChVoice) May 10, 2020
"'It could always be worse'. Yes of course, but it can always be better, too. And unbearable #pain right here, right now, is all that matters. It’s enough to break you permanently": https://t.co/ABY6O1Eg8y @chroniceileen #SuicideAwareness #ChronicPain #empathy #awareness
— A Chronic Voice (@AChVoice) May 7, 2020
"Although the severity of impairment differs greatly from patient to patient, 25% of people with ME are severely affected (housebound or bedbound). And sadly ME, at its most severe, can kill": https://t.co/3i4p3SirkP @JourneyFog #MECFS #pwme #MEAwareness #MyalgicEncephalomyelitis
— A Chronic Voice (@AChVoice) May 10, 2020
“Both #migraine disease and #fibromyalgia syndrome are #neurological diseases that cause #sensoryoverload…they feed off each other and over time brain receptors become more sensitive to pain. Pain begets pain": https://t.co/o3iORzB7Ft @nikki_albert #ChronicPain
— A Chronic Voice (@AChVoice) May 12, 2020
[Updated Post] "It’s #heartbreaking when they cry out and beg you for relief, yet there’s nothing more you can do for them": https://t.co/6dS6X4c5eL #MondayBlogs #ChronicPain #motherhood #ChronicallyIll
— A Chronic Voice (@AChVoice) May 11, 2020
“I want you to know that your #story doesn’t need a neat and tidy ending. I want you to know that your pain is not too much…I want you to know that your story matters": https://t.co/GyXttH43fj #LifeExperiences #inspiration #spoonies #ChronicLife
— A Chronic Voice (@AChVoice) May 8, 2020
Correct URL to post above: https://bit.ly/2An6xAD
“describing pain to your #doctor is for a completely different purpose. It can be to make them believe you, to explain how things have changed (positively or negatively), or to get a #diagnosis”: https://t.co/78qaozDHRF @kmitchellauthor #ChronicPain #ChronicIllness #spoonies
— A Chronic Voice (@AChVoice) May 13, 2020
“I’m currently in #survivalmode, and that’s ok. I will do what I need to to get through each day. I will remind myself things will not always be this tough": https://t.co/thomCtequz @JourneyFog #SelfReminder #ChronicPain #divorce #depression
— A Chronic Voice (@AChVoice) May 13, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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