Friday, 05 June 2020. Issue #216.
In this issue: Even basic tasks are challenging with chronic illness, and you live each day in survival mode. Grief, like chronic pain, comes and goes, but sit with it and you will be okay. Our bodies are resilient powerhouses without you even realising it, especially when you’re healthy. Acceptance isn’t defeat, but an allowance of grace whilst still trying your best. Can you relate to these best and worst parts about being stuck at home with a chronic illness or disability, especially during this lockdown? The current COVID-19 pandemic exposes the ableism that is present in society, as it shows that workplaces can indeed provide accommodations but don’t want to on a normal day. Experience is the best form of credibility, and it’s a strange opportunity to be able to help others with chronic illness because of this. Learning that there’s nothing wrong with living life one day at a time, without having your whole future mapped out. Why consistency of care and caregivers are so important. The loneliness of struggling to communicate after a traumatic brain injury, and how a speech and language therapy can help.
“Even basic tasks are #challenging. I’m often in what I call ‘#survivalmode’. All my limited energy is consumed by just getting through the day”: https://t.co/2fL47PYzPC @JourneyFog #ChronicFatigue #pwme #ChronicPain
— A Chronic Voice (@AChVoice) May 28, 2020
[New Post] "#Grief, like #chronicpain, comes and goes. It is the ocean, and I am the shore. I will be #broken, but there I remain. When it comes, it comes. When it goes, it goes. But sit with it, and you’ll be okay": https://t.co/szNgLoZHqf #MondayBlogs #loss
— A Chronic Voice (@AChVoice) May 31, 2020
"Our #bodies, when #healthy, are resilient powerhouses that can take a beating. Without you even being aware, it stores resources, utilises backups, and restores balance to keep you feeling your best": https://t.co/G6NVjgbGgK #SelfAwareness #ChronicLife #ChronicIllness
— A Chronic Voice (@AChVoice) May 30, 2020
[New Post] "That is what #acceptance means to me. It isn’t a #defeat…but an allowance of #grace. To keep trying my utmost best, whilst honouring how I feel and where I am in time": https://t.co/szNgLoZHqf #feelings #ChronicIllness pic.twitter.com/AdI6I9aVj5
— A Chronic Voice (@AChVoice) May 31, 2020
[New Post] "Take a look at what those with #chronicillness and #disability have to say about the best and worst parts about being #stuckathome below. Is it something u can relate to, whether you live with a chronic #health condition or not?": https://t.co/NBcDrUCd0I #MentalHealth pic.twitter.com/ZVd3rsgFb9
— A Chronic Voice (@AChVoice) May 28, 2020
“This whole experience exposes the #ableism that runs rampant throughout #society. The response to coronavirus proves that #employers can make accommodations, they just don’t want to": https://t.co/ED1jXRwCzw @TheMightySite #accessibility #disability
— A Chronic Voice (@AChVoice) June 3, 2020
"We can lead by example, because we are sick. A strange opportunity if you would…Experience after all, is the best form of credibility. Your #scars tell a story of #survival": https://t.co/uiOBtQQNFH #ChronicIllness #LifeLessons #spoonies
— A Chronic Voice (@AChVoice) June 2, 2020
"June marks my twenty-first birthday. I'm not thirteen anymore and I definitely don't have my life all planned out anymore. But you know what? That's okay. There's nothing wrong with living life #onedayatatime": https://t.co/axEAzBD0lM #linkup #POTS #spoonie #LifeLessons
— A Chronic Voice (@AChVoice) June 1, 2020
“Let me try to explain why new carers, especially without warning, are so distressing and exhausting for me, and why consistency of care is vital": https://t.co/cvNxsP0Ze5 @JourneyFog #QualityOfLife #caretakers #PatientCare #InvisibleIllness #disability
— A Chronic Voice (@AChVoice) May 30, 2020
"When we struggle to #communicate..it can leave u feeling very #lonely..vital that we con't to try as it helps our #brain to build new pathways to repair these skills. A speech & language #therapist can make a real difference": https://t.co/gIAHiUZaRZ @michelle_munt #TBI
— A Chronic Voice (@AChVoice) June 3, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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