Friday, 21 August 2020. Issue #227.
In this issue: When life (or death) teases you with good health for a short period of time as a chronically ill person. CBD research in the works, including Epidiolex as the first FDA approved drug for treating rare forms of seizures. The most dangerous period during pregnancy with Antiphospholipid Syndrome tends to be the later stages, where blood clots can form in the placenta. The irony of feeling guilty when resting or sleeping, when they are essential to keep going. Never take it lightly when someone so much as hints that they are suicidal. Spend some quality time with yourself, and make space in your emotional closet for your true wants and needs. A chronically ill body is complicated; often it breaks down for no reason, and is beyond repair. What it’s like self-injecting Humira for 12 years and make sure to switch to citrate free if you haven’t yet. The small things in life are usually what helps to get us going, and to keep going again. A list of disabled and chronic illness people to follow on YouTube.
"#Life (or was it #death?) winked at me & reminded me what it’s like to own a #body loaded w energy, ready to fire. It teased me & we got drunk on cheap wine, which re-opened up the pathways in the brain that inspire immortality": https://t.co/TzjMXFVnTj #spoonie #ChronicLife
— A Chronic Voice (@AChVoice) August 14, 2020
"Some #medical conditions it is said to help are #epilepsy, joint and muscle aches, anxiety and more. Many #clinicaltrials are still ongoing, with #Epidiolex as the first FDA approved drug derived from #CBD that treats rare forms of #seizures": https://t.co/7J2utvTrmr pic.twitter.com/Y1uvKCk8j7
— A Chronic Voice (@AChVoice) August 15, 2020
"The most dangerous period during #pregnancy with #APS is during the later stages, as this is when #bloodclots tend to form, cutting off supply to the placenta": https://t.co/1UmNcvw1xg #WomensHealth #AntiphospholipidSyndrome #ChronicIllness
— A Chronic Voice (@AChVoice) August 14, 2020
"I’m one of those silly people who feels #guilty when I ‘lie there and do nothing’, especially when #sleep is the bedrock of #health and life!": https://t.co/1CkEGzmEM3 #ChronicIllness #MentalHealth
— A Chronic Voice (@AChVoice) August 17, 2020
"PLEASE PLEASE PLEASE do not take it lightly when someone hints that they are feeling like they would be better off dead. Or that others would be better off without them etc..": https://t.co/edBEmmMkMC @harmony2001 #SuicideAwareness #suicidal #suicide #depression #awareness
— A Chronic Voice (@AChVoice) August 19, 2020
"Spend some #qualitytime with yourself. Do some digging in your #emotional closet and make space for what you really want and need": https://t.co/UhsX7Ljukm #peace #MentalHealth #ChronicLife
— A Chronic Voice (@AChVoice) August 18, 2020
“If you live with pain or a #chronicillness, it’s not quite as simple because our #bodies are often beyond #repair. They break down regularly and very often they do so for no reason whatsoever": https://t.co/EfByyJBNYy @DespitePainBlog #ChronicPain #AutoimmuneDisorders
— A Chronic Voice (@AChVoice) August 15, 2020
“Self-injecting takes some getting used to, but it’s..easier now that u dont hv to deal w any pain..a big win for the patient community—& if u havent made the switch to #CitrateFree yet, make sure u do now”: https://t.co/k3KmT2Xp1z @nataliesparacio #humira #IBD #ChronicIllenss
— A Chronic Voice (@AChVoice) August 17, 2020
"The #smallthings are the ones that can get us moving again and help us keep moving. With that in mind, I thought I’d share some small things that can make a big difference in our #wellbeing": https://t.co/SN5sZgulhL @HopeReclaiming #SelfCare #ChronicIllness #ChronicPain
— A Chronic Voice (@AChVoice) August 18, 2020
“I really want more people to know what I do and for them to not learn it all the hard way, like I’ve had to": https://t.co/LSWBZaMFXN @FootprintsNB #YouTubers #disabled #ChronicIllness #MentalHealth #ChronicallyIll
— A Chronic Voice (@AChVoice) August 16, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
If you liked this article, sign up for our mailing list here so you don’t miss out on our latest posts! You will also receive an e-book full of uplifting messages, quotes and illustrations, as a token of appreciation!
How cool is this! I’m so glad I made it here on this list 😀
I roundup the best posts every week on Twitter – I find it kind of fun to see what’s jiving with people at the moment, and also think it’s a nice way to give a shoutout to all the other chronic illness bloggers out there! 🙂