Friday, 02 October 2020. Issue #233.
In this issue: Should someone go out of their way to make us uncomfortable, we could possibly turn the tide and use it educate them instead. The good and bad of lockdown life – whilst some have found it hard to be apart from their friends and family for so long, others have grown closer to their loved ones. Isn’t gorging on a random cup of kale juice good for you?! – Find out why it isn’t when you live with Antiphospholipid Syndrome and are on warfarin. Whilst we can’t change our situations at times, we can change our perspective, which can be a powerful thing. You are not alone in your anxiety; be willing to talk about it so you can gain help. For those with chronic pain, painkillers can be a lifeline, making the days just that little bit more bearable. When you burst into tears after receiving a letter that you are high risk and need to shield; a reminder about just how ill you are. Pain, once it disappears, becomes a vague memory and can be difficult to relate to again after some time. A roundup of 17 chronic illness blogs you should follow (including A Chronic Voice – thanks for the mention! 🙂 ). Sometimes, an empathetic response acknowledge a person’s pain – and not pretending that you understand – is all that is needed.
"Should someone go out of their way to make us feel uncomfortable, perhaps we can turn the tables, and take it as an opportune moment for education": https://t.co/hOz6p4bS42 #awareness #InvisibleIllness #advocacy #ChronicPain #spoonies
— A Chronic Voice (@AChVoice) September 26, 2020
"Some find it hard to be apart from their #friends and #families physically, whilst others have grown closer to their loved ones as a result": https://t.co/NBcDrUCd0I #ChronicLife #spoonies #lockdown pic.twitter.com/WGPKvGwd1a
— A Chronic Voice (@AChVoice) September 25, 2020
[Updated Post] "But that means no gorging on a big bowl of #salad, or gulping down a random cup of #kalejuice because hey, isn’t that supposed to be #healthy?!": https://t.co/1UmNcvw1xg #Antiphospholipid #VitaminK pic.twitter.com/IbYyGJ3f71
— A Chronic Voice (@AChVoice) September 24, 2020
"Look at the big & tiny things u can actually do..We may not be able to change the situation itself, but we can #change our perspective, and #perspective is a hugely powerful thing": https://t.co/w8UdaYuTD3 @invisiblymeblog #SelfAwareness #isolation #MentalHealth #spoonies
— A Chronic Voice (@AChVoice) September 30, 2020
“You need to be open to talking and to appreciate that #mentalhealth issues are common and you are never alone”: https://t.co/ue5Ja0DYPo @Blog2Melinda #anxiety #ChronicLife
— A Chronic Voice (@AChVoice) September 26, 2020
“For those with continual pain, #painkillers can provide a lifeline like no other to make the days a little more bearable": https://t.co/QGz245vHKU @invisiblymeblog #QualityOfLife #OpioidCrisis #ChronicPain #awareness
— A Chronic Voice (@AChVoice) September 27, 2020
“I burst into tears at the letter. It was a very harsh reminder that 1 of my conditions was seen as ‘risky’ and that I had to be incredibly careful. It was the start of a dark time for my #mentalhealth”: https://t.co/9KXDF16OW2 @throughfibrofog #COVID19 #lockdown #ChronicallyIll
— A Chronic Voice (@AChVoice) September 29, 2020
"Mostly because the #pain experience once over vanishes from the mind rapidly and becomes a vague #memory. And trying to take that vague memory and imagining someone #enduring that their entire lives is impossible": https://t.co/MmoqDdzgnR @Nikki_Albert #InvisibleIllness #empathy
— A Chronic Voice (@AChVoice) September 25, 2020
“#AChronicVoice offers encouragement to #chronicillness sufferers who are struggling with #depression as well as #caregivers and medical researchers and #doctors” – thanks for the mention ♥️ https://t.co/GIRMzO6XMP @chronicmomlife
— A Chronic Voice (@AChVoice) September 30, 2020
“Sometimes an empathetic acknowledgement is enough: 'I am so sorry that you are going through this. I can’t pretend to know exactly how you feel, but I can listen. What can I do to help you?'": https://t.co/jkFinwQclg #JustListen #empathy #ChronicIllness #ChronicPain #friendship
— A Chronic Voice (@AChVoice) September 26, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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A fantastic round-up, Sheryl – thank you so much for including my opioid post here too. Painkillers really are a last lineline for so many, which is why the moves to reduce or remove such tools for pain management are so incredibly dangerous. A little more acknowledgement of that person’s pain and a bit of compassion can go a long way.