Friday, 23 October 2020. Issue #236.
In this issue: When you battle chronic pain, the emotional pain and rejection can feel much worse. The realisation of how tough medical appointments are when you need to keep going for them. The full blown effects of a panic attack, where you collapse on the floor and just heave and wail. There is a difference between being true to yourself and being intractable (video). When people dismiss COVID-19 as nothing serious, they are also dismissing the lives of those with chronic illnesses. Gratitude for having a good support network, when you’re at your worst all times, and inabilities pile up over the years. The first step taken in years without pain, thanks to Keego, an AI support robot. Never did she think that she’d end up needing a cane to walk at age 34, or that she’d be in constant pain every day. How one ostomate inspires another, as they go about life positively despite an ostomy bag. The need to be all in this together, if we are to beat COVID-19.
“The emotional #pain of feeling #rejection. I always feel I am not enough. I feel I ‘should’ be holding down a job..People who were close to me no longer are. The #fatigue & #emotions I battle w weigh in addition to my #health struggles…": https://t.co/QPNDW3ULyN @harmony2001
— A Chronic Voice (@AChVoice) October 18, 2020
"I don’t think I ever would have realised that a #medicalappointment would be so #tiring before I had to go them so frequently. It’s just showing up for a ten or twenty minute conversation isn’t it? Of course not": https://t.co/fkfRkUj2QT @throughfibrofog #ChronicLife #spoonies
— A Chronic Voice (@AChVoice) October 18, 2020
[New Post] "I had a full blown #panicattack yesterday, the sort where I collapse onto the floor and heave, and wail, and scream my lungs out, not caring if the neighbours hear me": https://t.co/M8KPJJYMNF #MentalDisorder #MentalHealth #WritingCommunity #ChronicPain pic.twitter.com/2SEmjcjscK
— A Chronic Voice (@AChVoice) October 21, 2020
"We often believe that we must remain true to ourselves throughout life. But there is a crucial difference between being true, and being intractable": https://t.co/p4cRKTlRXI #SelfCare #mindfulness #MentalHealth #wisdom #PersonalGrowth pic.twitter.com/05eupR3t6k
— A Chronic Voice (@AChVoice) October 18, 2020
“When people dismiss the #disease as a hoax or nothing serious, they write my life off as expendable": https://t.co/cCFgZmFqiF @CreakyJoints #ChronicIllness #InvisibleIllness #COVID19 #australian
— A Chronic Voice (@AChVoice) October 18, 2020
"Then the inabilities started to pile up over the years…..When you’re at your worst at almost all times. It’s quite #impossible to go through all that alone, and I’m lucky and #thankful that I have a good #support network": https://t.co/oLJnOji4JL #caregivers #gratitude
— A Chronic Voice (@AChVoice) October 17, 2020
“It was the first step I had taken in years that didn’t cause pain. #KEEOGO took over for me. As I moved forward, the sensors, advanced artificial intelligence software system & motor kicked in where I needed support”: https://t.co/gbSzytN7nM @globetrotteri #exoskeleton #robotics
— A Chronic Voice (@AChVoice) October 21, 2020
“That I would have to use a cane at age 34..That there would be days I would not be able to walk. That there would be many days it feels like I am walking on shards of glass. That I would be in pain constantly”: https://t.co/aTvUuLGwYY @globetrotteri #ChronicIllness #ChronicPain
— A Chronic Voice (@AChVoice) October 20, 2020
“Seeing Lisa coping really well w hers, still being able to go to work and maintain a #relationship etc., made me feel so much better about things & that an #ostomy wouldn’t mean the end of my life as I knew it": https://t.co/Yi9Cem0ZIT @thespooniemummy #spoonies #ostomate
— A Chronic Voice (@AChVoice) October 18, 2020
“I am grateful for the people who have taken this #pandemic seriously. But to beat this, we really need to all be in this together": https://t.co/UuZSgAvogM @creakyjoints @chroniceileen #StrongerTogether #ChronicLife #RheumatoidArthritis #covid19
— A Chronic Voice (@AChVoice) October 17, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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Thanks for including my blog post – glad people found it helpful and informative!
Most welcome and well done on sharing your article!