Friday, 06 November 2020. Issue #238.
In this issue: Real life mini interviews of people with chronic illness and disability, whose lives are in permanent lockdown of sorts. The societal issues with the chronically ill who are ‘in between’ too well and too ill to work or to claim disability benefits. Share your best holiday coping tips as a person with chronic illness or disability and get published on the blog! No two cases of chronic illness are the same; every perspective adds to the over all picture towards understanding them better. Those with chronic illness need to hold onto both the insistence of the reality of their disease, and resistance to their worst fears. Let your inner child free; they need taking care of, too. When you both are the caregiver and patient, it’s important to trust each other especially during flare ups. People with chronic pain are experts at living with pain that you wouldn’t believe or be able to function at. Important fall fashion tip for people with fibromyalgia and arthritis: remember to layer! The chronic pain paradox; when people start accusing you of complaining too much and projecting negativity when you do talk about it.
[New Post] “These r real life mini interviews, fr actual people who live with a #chronicillness or #disability. U will see that apart from #chronicpain, overwhelming #fatigue & the accompanying payback down time is a huge deterrent for many": https://t.co/Q1grWisW6P #MondayBlogs pic.twitter.com/RpwWNiS2ai
— A Chronic Voice (@AChVoice) November 1, 2020
“I’m not ‘well enough’ to #work full-time in a traditional #occupation, but not ‘ill enough’ to claim #disability benefits such as PIP and Employment Support Allowance to make up for the gap in my wages”: https://t.co/P74YpcI1Jn @lifeofpippa_ #DisabilityAwareness #society
— A Chronic Voice (@AChVoice) October 30, 2020
"How People with #ChronicIllness or #Disability Cope with the #HolidaySeason & Tips for Spending It in #Lockdown" – A little #holiday survey. Share and be published on the blog! https://t.co/xmiCtjtXgG pic.twitter.com/xABWFn3JDA
— A Chronic Voice (@AChVoice) November 4, 2020
"Chronic illnesses are complex and no 2 cases are the same. We need to listen to as many #perspectives as possible, because each one adds a little colour to the over all picture of understanding": https://t.co/iK6FgZwaqO #StrongerTogether #spoonies #WritingCommunity #ChronicPain
— A Chronic Voice (@AChVoice) November 3, 2020
“In the wise words of Megan O’Rourke: 'The #chronicallyill patient has to hold in mind two contradictory modes: insistence on the #reality of her #disease, and resistance to her own catastrophic #fears'": https://t.co/I5GH3BiMXf #ChronicPain
— A Chronic Voice (@AChVoice) October 30, 2020
"A wonderful reminder. Let your #innerchild free. They need taking care of 💕”: https://t.co/QbRrt4q8ty #SelfCare #MentalHealth #SelfAwareness #spoonies pic.twitter.com/AAaXyt1BdC
— A Chronic Voice (@AChVoice) November 4, 2020
“When either of us are going through a #flareup or even the smallest form of discomfort, we #trust each other..There is a lot of power in knowing that you are believed": https://t.co/ojBikfNSP1 @FootprintsNB #InvisibleIllness #caregivers #ChronicIllness
— A Chronic Voice (@AChVoice) November 2, 2020
“People with #chronicpain are experts at living with pain levels that you would not believe or be able to function at": https://t.co/nw9n7XZ8fI @TopladyTalks #InvisibleDisabilitiesWeek #InvisibleDisabilities #InvisibleIllness #awareness
— A Chronic Voice (@AChVoice) November 1, 2020
“One of my biggest #fibromyalgia and #arthritis #fallfashion mistakes was failing to layer. Fall is sweater weather! Well it used to be before fibro and #psoriaticarthritis”: https://t.co/tVGyQezBiI @TheDisabledDiva #ChronicPain
— A Chronic Voice (@AChVoice) October 30, 2020
“then people are all like. Stop #complaining. Some people have it worse. Some people have cancer, you know. Why do you mention it, you’re like projecting it into the world and being all #negative…": https://t.co/kJh1tPfybI @Nikki_Albert #spoonies #KindnessMatters #ChronicLife
— A Chronic Voice (@AChVoice) November 4, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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