Friday, 19 February 2021. Issue #253.
In this issue: How to advocate for yourself at the doctor’s by preparing questions, expectations and more before the appointment. Change is the only constant in life, so we need to keep learning and growing at our own pace. When there are too many ‘what ifs’ and ‘maybes’. Sometimes your own coping strategies hit a brick wall, and you need help from therapists, medications or something else. Chronic pain messes with your psyche, as you get worried when things get too unbelievably ‘stable’. When anxiety isn’t a separate issue, but the result of living with chronic illness. Healthy people often feel uncomfortable around people who are chronically ill and make assumptions for them, when asking the person directly would be better. To truly create accessible places, actual disabled people need to be included in the conversation around planning and design – who else would understand better? The harm and danger when pharmacists override a doctor’s judgement of whether a patient needs a certain medication or not. The importance of making heart healthy choices for people with Lupus due to increased risk factors.
"We need to keep learning, growing and improving at our own pace, as change is the only constant in life" – Join us in the February Linkup here: https://t.co/lOH7jkYfF0 #SelfEducation #WritingCommunity #spoonies #ChronicallyIll #ChronicLife
— A Chronic Voice (@AChVoice) February 15, 2021
"There are too many #maybes, #whatifs, and could have beens that fateful Monday. It was everybody’s fault, and nobody’s #fault": https://t.co/szNgLoZHqf #LifeExperiences #ShortStory pic.twitter.com/WuhSpNItYC
— A Chronic Voice (@AChVoice) February 15, 2021
"Sometimes your own buckets of water aren’t enough to put the fire out, and you need the help of professional firefighters. They often come in the form of #therapy, #medications and more": https://t.co/skeX5vcmus #ChronicPain #MentalIllness #depression pic.twitter.com/nUGwU9in33
— A Chronic Voice (@AChVoice) February 16, 2021
"Sometimes we get so used to [the #unpredictability & #ChronicPain] that we panic when things are too ‘stable’ – can it be true? What horrible thing is going to happen next? It really messes with your psyche": https://t.co/joSvG9FUbc #anxiety #spoonies #ChronicPain
— A Chronic Voice (@AChVoice) February 12, 2021
"Now I realise that #anxiety is not a separate issue but has developed because of a #chronicillness": https://t.co/gZEDdsUj7C @serenebutterfly #MentalHealth #SelfAwareness #spoonie
— A Chronic Voice (@AChVoice) February 11, 2021
"#Healthy #people feel uncomfortable w #illness & so they make #assumptions about what I can or can’t do, which creates all sorts of problems. If someone asks me what I feel comfortable w I have no problem answering directly": https://t.co/aOJHXldjcO @chronicmom1 #communication
— A Chronic Voice (@AChVoice) February 15, 2021
"To truly create #accessible spaces, #disabled people need to be part of the conversation around #design and #planning": https://t.co/FkNZUhqov6 @Thrivingwdisabl #accessibility
— A Chronic Voice (@AChVoice) February 15, 2021
"Are there tests u consider relevant? A new #medication to suggest a discussion of? Have an idea of how to go forward, even if that does come down to simply staying as is, & reviewing again in a few months time": https://t.co/fkfRkUj2QT @throughfibrofog #ChronicIllness #spoonies
— A Chronic Voice (@AChVoice) February 15, 2021
“It overrides the judgment of the doctor who actually knows your medical history. It also hurts #patients because most #doctors are too busy to write a prescription every time a #pharmacist decides to play doctor": https://t.co/aPfn2jTngb @chronicmom1 #OpioidCrisis #ChronicPain
— A Chronic Voice (@AChVoice) February 13, 2021
“#Lupus is one of the strongest known risk factors for #cardiac events. The latest #research points to specific risk factors that may make people with lupus more vulnerable and underscores the importance of making #hearthealthy #lifestyle choices”: https://t.co/C9wSYYxjrU
— A Chronic Voice (@AChVoice) February 13, 2021
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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