Issue #256: Being Unable to Work Due to Chronic Illness is Heartbreaking & Doctors May be More Knowledgeable, But They Don’t Live in Your Body

Friday, 12 March 2021. Issue #256.

In This Issue:

1. Everyone with chronic illness has their own special pain relief toolkit that works specifically for them.
2. We still have a long way to go in terms of conversation and stigma in relation to suicide and suicidal ideation.
3. People who don’t live with chronic pain simply do not understand it; that when our bodies say to stop, we need to listen or suffer terrible consequences.
4. Because of my lack from being chronically ill, I can be filled up with the beauty of life itself.
5. Self-identity is based on how you view your own self, what you care about and your priorities; not your work or productivity levels.
6. When you live with chronic pain, it is persistent, consistent, and there is never an ‘off’ button.
7. Being unable to work due to chronic illness is heartbreaking and not easy to give up on.
8. Doctors need to understand that treatment is a two-way street; they may have more knowledge, but they do not live in your body.
9. When you can’t help but smile at your loved one’s efforts to make you feel better when you’re in a bad mood.
10. It’s nice to support a fellow spoonie, and one way to do so is through purchasing things via their affiliate links.

"Everyone with a #chronicillness has their own special #painrelief toolkit. We all use different things to relieve pain, as not everything works the same for us all": https://t.co/adohCv0CLN #ChronicPain #PainManagement #MondayBlogs pic.twitter.com/ln14e9ieHg

— A Chronic Voice (@AChVoice) March 7, 2021

[Updated Post] Written in the early days of my blog, I still think we have a long way to go with conversations and #stigma about #suicide and #suicidalideation: https://t.co/xW9e2hOtZU #MentalHealthMatters #MondayBlogs

— A Chronic Voice (@AChVoice) March 8, 2021

“People who don’t have #fibromyalgia or another #chronicillness often don’t get that #chronicpain is an ongoing struggle. If my #body tells me not to do something, I better listen": https://t.co/AES4VB1UXx @TheMightySite #ChronicLife

— A Chronic Voice (@AChVoice) March 7, 2021

"The roots are to #survival, as the blossoms are to #thriving. If I can keep going, I then, become an instrument for the #beauty of life, I become the canvas for the master painter. Because of my lack, I can be filled up with life itself": https://t.co/r2YKIjaKYX #LifeLessons pic.twitter.com/ViEw1HdoO9

— A Chronic Voice (@AChVoice) March 9, 2021

"I don’t need to feel #ashamed that I cannot #work & earn money for myself. My #identity is not based upon my #productivity. It is based on what I care about, my #priorities and it is about how I see myself": https://t.co/cyx7ypZ88c @ChronicalillKat #ChronicIllness

— A Chronic Voice (@AChVoice) March 10, 2021

“The pain is constant; yes, there are times when it might be better than other days, but there is never an off-button..Pain is often wholly overwhelming, entirely #unpredictable, and #frustrating”: https://t.co/ZYCENqfNae @serenebutterfly #ChronicPain #ChronicIllness #FND

— A Chronic Voice (@AChVoice) March 10, 2021

“Being unable to #work is soul destroying, it was never an active choice and one that took an awful lot of thought to commit to": https://t.co/ekv9xB9Ugv @accessiblerach #career #spoonie #ChronicLife #ChronicPain

— A Chronic Voice (@AChVoice) March 5, 2021

“what #doctors have to understand is it’s a two-way street because although you may have more #knowledge on my condition than I do you are not an expert with living with it”: https://t.co/t3uRVUgdSp @sarahlynn358 #PatientCare #disability #InvisibleIllness

— A Chronic Voice (@AChVoice) March 6, 2021

“I have a hard time being in a bad #mood around my #husband. Even when I’m in a lot of pain and don’t find him nearly as funny as usual, I can still crack a tiny #smile at his efforts to make me feel better. Plus I love his hugs": https://t.co/brby2VbIXH @PainReaction1 #spoonie

— A Chronic Voice (@AChVoice) March 8, 2021

"It’s always nice to #support fellow #spoonies, so if u r looking for some #migraine glasses, #chronicillness clothing or any kind of #health items then it may be worth seeing if your friends on social media have affiliate partnerships": https://t.co/PHWZWRPvG6 @throughfibrofog

— A Chronic Voice (@AChVoice) March 6, 2021

*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.

Read Related Posts:
• Chronic Pain: How to Approach a Loved One Without Pushing Them Away
• Finding Your Self Behind the Illness (Your Story Isn’t Over Yet)
• The Stories We Tell Ourselves: Prisons or Paths to Freedom
• 5 Deceptively Simple Everyday Achievements
• Chronic Stress, the Silent Assassin
• Dealing with Pain, One Second at a Time
• 4 Everyday Scenarios We’re Not Sure How to be Polite About and Why
• Call Me Sick Girl (Or How to Make Your Weakness Your Strength)
• Is My Doctor Right for Me?

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