Two New Diagnoses – Epiphrenic Esophageal Diverticulum & Mitral Valve Stenosis Whilst I haven’t heard much good news in a long time, I did not expect 2025 to be a harbinger of such terrible news. It seems like I will need to get two major surgeries done, one for a severe mitral valve stenosis, and […]
Why am I Writing About the Rare Disease, Esophageal Diverticulum? The short answer is because I was recently diagnosed with it, although symptoms have been accumulating for some time now. I had simply assumed that all the regurgitation and vomiting, even in the middle of the night, were due to acid reflux. If not for […]
Darkness Needs Lightness for Balance… All of my recent posts have been extremely ‘heavy’, so to speak. First, there were the two knee injury series – one on resources for post knee surgery, and the other on things you can do whilst bed bound. Then, there was the Antiphospholipid Syndrome A to Z resource, which […]
You may have heard of the rare blood clotting disorder, Antiphospholipid Syndrome, but did you know that it isn’t ‘just’ about the blood? This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site from a patient perspective. It consists of findings from research journals, as well as […]
This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site. In this post, we will focus on medications and Antiphospholipid Syndrome. In particular, warfarin is a key medication for the management of APS, especially if you’ve experienced blood clotting events in the past. We will also take […]
This post is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site for patients, as a patient who’s lived with it for more than two decades myself. This article in particular will focus on all things related to the female sex and women’s health in Antiphospholipid Syndrome. It will […]
The bad news about Antiphospholipid Syndrome (APS) is that it’s chronic. The good news is that there are quite a number of exciting new treatments in the works. This article is part of the APS resource library that I’m building up on the site for patients, as a patient who has lived with it for […]
Travelling with Chronic Illness & Disability – Why I Do It Anyway Travelling is one of my biggest passions in life, and I’d like to share my top tips for travelling with chronic illness and disability in this post. Whilst we all travel for various reasons and find pleasure in different things, being chronically ill […]
I’m not going to lie, but it’s going to hurt pretty badly after major knee surgery, or any surgery for that matter. This article is part 4 of 6 in a series that covers resources and therapies for pain after major knee surgery. It is also applicable for anyone who is bed bound from acute […]
You’re literally going to live on your bed for the next couple of months after a knee surgery or major surgery, so you’ll want to get as comfortable as it gets. Your butt and back are going to ache, and it’s not very… interesting, to put it simply. This post is part of a series […]