Useful Things to Do While on Bed Rest After Surgery: Education, Advocacy & Volunteering (Part 5 of 5)

This post is part of a series on my knee surgery and recovery journey, and how I coped with all that down time. I spent a good part of a year bed bound, in pain, and also bored. Afternoons were the toughest, as it felt like a state of limbo, where the world was speeding […]

Coming Alive in the Winter Air (Pushing for Personal Changes & Group Advocacy)

Looking February…what should I say about 2020 so far? There’s been a mix of good and bad, as there always is, but let’s say that it’s been mostly awesome just for the new experiences in itself. Winter has been a fascinating season for me in every which way. The Lupus and Sjögren’s has been flaring […]

Call Me Sick Girl (Or How to Make Your Weakness Your Strength) | www.achronicvoice.com

Why Many People with Chronic Illness Hate to be Known as ‘Sick’ From reading articles online, I’m aware that many of us with chronic illnesses don’t like to be known as sick or weak. No human being does, really. There are many reasons why one might dislike the association with their illness, such as: We […]