Antiphospholipid Syndrome

12 Visible Evidence of a Body Gone Rogue

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The invisibility of chronic illness makes it incredibly frustrating. We look healthy, yet the pain under our skin can be excruciating. But is pain ever fully invisible? Painkillers mask the evidence of chronic pain somewhat, yet they often provide minimal relief. A body gone rogue is not easy to tame. And taming it requires a […]

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What it Feels Like to be Refused Treatment by a Hospital’s A&E / ER

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When Acute Pain Strikes, and You Know What It Entails A sharp pain struck the left side of my abdomen whilst I was asleep, and I just knew. I hurried to pop a pain pill, in hopes that the ache would subside. Sometimes that’s a small, albeit hacky, hint that it’s ‘just’ one of those […]

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A String of Bad Days (and What Happened When That Good Day Finally Came Along) | A Chronic Voice

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A Mixed Psychological State I’ve been in states of depression again of late. I’ve been through this cycle enough times to know that my brain chemistry is messed up again, although I have cause to believe that my epilepsy has a hand in them as well. I feel somewhat hypomanic at the same time, but […]

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November 2018 Prompts: Meeting, Advocating, Tweaking, Working & Curating | A Chronic Voice

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CLICK HERE to submit your own entry, and to read about what others are up to as well! Meeting Most of us spend lots of time meeting a selection of doctors, even though we’d rather be well enough to meet our friends or family. Some of us don’t like meeting people at all, or maybe […]

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June 2018 Prompts: Reminding, Pacing, Surrendering, Improving & Flowing | www.achronicvoice.com

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CLICK HERE to submit your own entry, and to read about what others are up to as well! Reminding myself to listen to my body a little better…again. So I was in the hospital again last week. As you may already know, managing chronic illnesses is all about the balance. While I’ve gotten quite good […]

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The Annoying Thing About Living with Antiphospholipid Syndrome… (My Personal Experiences)

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Do you have a friend or know someone living with Antiphospholipid Syndrome (APS), or another blood clotting disorder? It can be a real pain, and interferes with treatments for many other chronic illnesses. I’m not discounting the severity of any other disease, but today I’d like to share with you on how having APS can […]

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A Day in the Life: Why Social Functions Are So Exhausting For Us

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So your friend with a chronic illness has rejected your party invitation…again. Or they’ve included a list of T&Cs just in case they have to bail last minute. What’s up with that? Do they hate you or something? I booked a champagne brunch the other day for the boy’s birthday and thought, why not use […]

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An Experience from Hell: Pulmonary Embolism, DVTs & Antiphospholipid Syndrome

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A Careless Misdiagnosis: “Muscular Cramps” Instead of Pulmonary Embolism “It’s just a muscular cramp”. The general practitioner I saw dismissed my intense pains with a swift diagnosis. He gave me some muscle relaxants and sent me limping off. Meanwhile, a monstrous pulmonary embolism gathered in size and strength, as multiple DVTs (deep vein thromboses) triggered […]

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