A health, wellness and chronic illness blog that aims to articulate lifelong illness and disabilities from various perspectives.
This article is part of an ongoing series about my Spontaneous Bilateral Patellar Tendon Rupture incident as a patient with Lupus, other chronic diseases and steroid therapy. Each part of the series will be updated and can be referenced below: Spontaneous Bilateral Patellar Tendon Rupture Series: What It Feels Like to be Suddenly Disabled Knee […]
The invisibility of chronic illness makes it incredibly frustrating. We look healthy, yet the pain under our skin can be excruciating. But is pain ever fully invisible? Painkillers mask the evidence of chronic pain somewhat, yet they often provide minimal relief. A body gone rogue is not easy to tame. And taming it requires a […]
Continue reading "12 Visible Evidence of a Body Gone Rogue (Is Invisible Illness Truly Invisible?)"
Chronic illness is a fine balance, and sometimes that balance can feel like a no man’s land, or a void where you’re treading water all alone. Surpass that and suffer the consequences of a pain flare. Remain in that state and guilt can start to creep up on you. Am I really in a state […]
Continue reading "The Eternal Spoonie Struggle: Justifying Rest & Recovery Time"
The Sudden Beginnings of Unwellness I rarely take pain meds for something as ‘trivial’ as joint aches. But I popped one that day as I had work to do the next day, and I needed all the energy a good night of sleep could provide. Don’t get me wrong, these aches aren’t trivial at all, […]
Continue reading "“But That’s Normal for Me” (Why I Mistook Dengue Fever for a Lupus Flare)"
*Note: While this post is sponsored by Make Great Light, all opinions expressed in this review are my own. My Personal Experience Working at Various Offices I started my career as a web developer in an advertising agency, and we occupied three different buildings over the span of two years. After I had to resign […]
Continue reading "“Make Great Light” Review: UV Light Filters for Instant Indoor Protection"
Welcome to Adult Life I entered my adult years in turmoil no thanks to Lupus. At 20 I developed epilepsy, then leukopenia, crippling arthritis pains and endometrial polyps in the years to follow. Some of these were a direct result of my illnesses, and others were side effects of medications taken to control them. I […]
Continue reading "An Anaphylaxis Reaction from Rituximab in Between Shady Years"
Many chronic conditions are often overlooked because they don’t sound that painful or difficult to deal with. The person may even look well! Are they just craving attention, being lazy or faking it? Before experiencing these symptoms for myself, I too, have been guilty of ignorant and unkind thoughts within the privacy of my mind. […]
Continue reading "3 Types of Chronic Pain that Sound Bearable, but are Not"
The Calm Before the Storm The three year ‘break’ after the multiple blood clots disaster, was just the calm before the storm. A little breather before the heavy duty fighting that was to come. The death of life as I knew it, and the personality I thought was mine twisted by the hands of fate. […]
*Disclaimer: This article is meant for educational purposes, and is based on my personal experiences as a patient. I am not a doctor, and nothing in this article should be substituted for medical advice. Please consult your own doctor before changing or adding any new treatment protocols. This post may also contain affiliate links. It […]
Why the Need to See So Different Doctors? Autoimmune disorders are a complex beast; no two patients are the same, despite having a shared illness. There is no standard medication, like antibiotics to treat a common flu. Every patient’s custom combination of drugs comes from trial and error, and we often need to see different […]
Continue reading "Why I Need to See 10 Different Doctors on a Regular Basis"