Saturday, 16 June 2018. Issue #114. In this issue: Finding the way back to hope. Every tissue and cell in our body renews at a faster rate when we sleep. An invitation to speak about pulmonary hypertension at the COPD conference in Rome. That guilty feeling when you look well and go out, even though […]
Saturday, 02 June 2018. Issue #112. In this issue: Fatigue from chronic illness can’t be fixed by merely resting or sleeping, and exists on a whole new level. There is an important difference between pain tolerance and pain threshold. Putting medications and herbs aside, even regular foods can be dangerous for someone with Antiphospholipid Syndrome. […]
Saturday, 19 May 2018. Issue #110. In this issue: Life encompasses all ways of living; you don’t have to tie yourself down to a narrow frame of ‘strength’. Acceptance doesn’t mean giving up, but focussing on what you can rather than what you can’t do. How many spoonies would like for society to treat them […]
Saturday, 31 March 2018. Issue #103. In this issue: The hard reality that you might be unappealing to some because of your illness. Some great reads for both the healthy and ill alike. The realisation that you’re putting actual living on hold while managing chronic illnesses. When you want to do nice things for your […]
Sun, 25 Mar 2018. Issue #102. In this issue: Egg hatching, the wonders of life! Masking pain in every way possible. Cherishing the good days without feeling guilty towards societal expectations. Finding strength and hope amidst endless pain. Trusting life to lead you onwards. Quotes that help with mental illness recovery. What Wheelescapades’ dream wheelchair […]
Sat, 10 Mar 2018. Issue #100. In this issue: Jennifer Brea was a Ph.D. student at Harvard, when she was struck down by the mysterious Chronic Fatigue Syndrome. The need for disabilities to be normalised, especially for young people. A poll on how people with chronic pain cope with their careers. Phone anxiety is real. […]
Who is Jennifer Brea, and What is “Unrest” About? Jennifer Brea was a Ph.D. student at Harvard, when she was struck down by a mysterious illness. This is a documentary of both her and her husband’s journey, living with this nightmare of a disease called ME/CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome). She approached me […]
Mon, 26 Feb 2018. Issue #98. In this issue: The need for disability in young people to be normalised, not stigmatised. Chronic fatigue and what it feels like. Clever eating hacks for spoonies. Beauty can exist despite drab circumstances. The need to stop thinking too rigidly, and categorising all illnesses as ‘cancer’ or ‘not cancer’. […]
Sat, 03 Feb 2018. Issue #95. In this issue: The emotional toll when people don’t believe that you’re in pain. When those who are supposed to protect you in society are ignorant. The validation and understanding that comes from others in pain, because healthy people don’t get it. Brain fog is exactly how it sounds […]
Sat, 28 Jan 2018. Issue #94. In this issue: It can be a big help when healthcare professionals validate your pain. Smiling a lot to release happy hormones. The different types of tasks service dogs do. Paying with pain for trying to do things that any young adult would. When giving up feels like a […]
Sat, 20 Jan 2018. Issue #93. In this issue: Up close and personal with Chronic Fatigue Syndrome in Jennifer Brea’s film, “Unrest”. Designing a new menstrual cup for disabled women out of necessity. When doctors should be on your side, but aren’t. When everyone seems to be adulting, but not you. The difficult question of […]
