"A Day in the Life" Linkup: What's it Like to Live with a Disability or Chronic Illness? | Featured Image

Have you ever wondered what it’s like to live with a chronic illness or disability, or how different another person’s life looks like from yours? This linkup aims to answer those questions. Why Should You Share? Here are some good reasons to share about your life with chronic illness, pain and/or disability: Education. It helps […]

If there’s one passion that my father passed on to me, it would be travelling. More of the rugged, far out type of places, rather than posh retreats. As you will see in this interview, his best memories are all travel-related as a family. And if you’ve read the interview with my mum for Mother’s […]

“It’s in My Blood” Feature #2: Cheyanne Perry of "Hospital Princess" | www.achronicvoice.com

Featuring Cheyanne Perry of “Hospital Princess” Cheyanne is one of my favourite chronic illness bloggers out there who lives with a number of chronic illnesses: Ehlers-Danlos Syndrome, Dysautonomia, Gatroparesis and Mast Cell Disease. Because of that, she can’t quite eat food the usual way, and needs to be fed through a tube or IV line. […]

Issue #165: The Dread of Summer When You Can't Regulate Your Body Temperature & Craving That Elusive Thing Called Sleep | Featured Image

Friday, 14 June 2019. Issue #165. In this issue: The dread of summer when you can’t regulate your body temperature. When your supportive community turns hostile, because you’re in remission. The constant reminder from others about how prednisone makes you fat, when you’re just trying to stay alive. It would be nice to take a […]

Issue #164: Schedule Time to Rest or Your Body Will Do So for You & the World is Still a Wondrous Place Despite all the Suffering that Exists | A Chronic Voice | Featured Image

Friday, 07 Jun 2019. Issue #164. In this issue: Updated About page on A Chronic Voice with more information and resources. Schedule time for rest or your body will do so for you, and it won’t be pleasant. Your illness can’t be that bad because you’re still alive, right? Whilst yoga does not cure chronic […]

Issue #163: Living in Silence with Chronic Illness for Fear of Being a Burden & Tips to Improve Your Quality of Life as a Person with Disabilities | A Chronic Voice | Featured Image

Friday, 31 May 2019. Issue #163. In this issue: Tips to improve your quality of life with some home and lifestyle changes, as a person with disabilities. Being hypersensitive to everything from light to vibration and temperature with Myalgic Encephalomyelitis. Living in silence with chronic illness for fear of being a burden, and how writing/blogging […]

Tips & Tools to Help Regain Independence with a Disability or Chronic Illness | A Chronic Voice | Featured Image

*Note: Whilst this post is sponsored by Age UK Mobility, all opinions expressed in this review are my own. Living with a disability, whether visible or invisible, can transform the simplest everyday task into a challenging beast. One that requires tremendous effort to overcome, and saps you of energy when the day has barely begun. […]

Issue #162: When You Forget What it Feels Like to be Pain-Free & There are Many Sources of Hope, Which Looks Different for Everyone | A Chronic Voice

Friday, 24 May 2019. Issue #162. In this issue: Feeling like a private investigator with chronic illness, as you seek out effective treatments. The admiration for and strength required to survive depression every day. A gentle reminder that bad thoughts will pass. There are many sources of hope out there, and it comes in different […]

Issue #161: Hundreds of People Share What Helps Them to Regain Independence & Ride a Pain Flare Out Gently to Minimise Its Impact Featured Image

Friday, 17 May 2019. Issue #161. In this issue: Hundreds of people share their tips and thoughts on what helps them regain some independence in life. The scepticism and lack of specialist care services in many parts of the world for ME/CFS. The foreign notion of ‘never recovering’ that healthy people can’t grasp. When your […]

The Power and Purpose of Blogging, and Why You Should Write featured image

*Note: This post was first published on writersam.co.uk Is Blogging About Chronic Illness Worth the Effort? Blogging about chronic illnesses can be hard work. For some, the exposure of their privacy or the intimacy of the topics can be a deterrent. Others struggle with expressing their thoughts, or posting content on a regular basis. Vicious, […]

Issue #160: Hundreds of People with Chronic Illnesses Share Their Thoughts on What They Find Most Challenging, Besides the Pain Itself | A Chronic Voice

Friday, 10 May 2019. Issue #160. In this issue: Hundreds of people with chronic illnesses share their thoughts on what they find most challenging, besides the pain itself. Publication of a new book with proceeds going to the charity, “Invest in ME Research”. Friendship isn’t about changing people, but showing up for them when they […]