Thank you for dropping by. This blog was created to fulfil the following needs.
It isn’t always easy to articulate chronic illness, because we look fine on the outside for the most part. I would like to open a window into our thoughts, so that light may flow both ways.
By detailing certain aspects of my experiences here, I hope to provide some insight that will prove useful for the unsung caregivers in the background, who might be trying their best to be supportive, yet struggle to understand what it is that their loved ones really need.
For Medical Researchers & Doctors
Perhaps it is somewhat ambitious, but I hope that medical researchers and/or doctors are able to use some of the data listed here, to take another step towards solving the big mystery of autoimmune disorders.
Afterall, who knows the effect of disease and consequence of treatment better than the patient?
I find writing in itself cathartic. It forces me to pay attention, to be mindful. It also forces me to reveal my ‘weaknesses’, which is something I detest. But I want to learn how to be comfortable saying ‘I need help’, because at the end of the day we all do, and to be truly well in every sense of the word, I have to stop denying myself of what I need.
For Those Who are Suffering
Finally, I want to let the many others who are suffering out there know that they are not alone. People say to me all the time, “I’m sick, but of course it’s nothing as bad as what you’re going through.”
But I’d like to refute the comparison of ‘more suffering’ or ‘less suffering’ here. Why add an extra burden of guilt upon ourselves?
I don’t mean to sound morbid, but I hope that through the solidarity of our suffering in many forms, we can be comforted in the knowledge that we are not alone and through that, find strength to be human yet again.
It is not that easy to die. (This sentence is an unspoken code for those who have suffered greatly – you know what I mean. :))
Thank you for taking the time to be here. If you have any questions or topics you would like to see discussed, or should you be interested in contributing, please feel free to let me know. Wishing you nothing but the best that life has to offer.