How Does Antiphospholipid Syndrome Affect The Body? (Beyond the Blood to Major Organs)

You may have heard of the rare blood clotting disorder, Antiphospholipid Syndrome, but did you know that it isn’t ‘just’ about the blood? This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site from a patient perspective. It consists of findings from research journals, as well as […]

Planning For Travel With A Chronic Illness: The Importance of Travel Insurance

Travelling can be an exciting and enriching experience, offering new perspectives, relaxation, and adventure. However, for those with chronic illnesses, planning a trip can require careful consideration and extra preparation to ensure safety and peace of mind. One of the most important aspects of this preparation is security and an appropriate travel insurance policy. This […]

The Lowdown on Medications & Antiphospholipid Syndrome (Warfarin, Enoxaparin, DOACs, NSAIDs & More)

This article is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site. In this post, we will focus on medications and Antiphospholipid Syndrome. In particular, warfarin is a key medication for the management of APS, especially if you’ve experienced blood clotting events in the past. We will also take […]

Pregnancy, Miscarriage & Women's Health in Antiphospholipid Syndrome

This post is part of the Antiphospholipid Syndrome (APS) resource library that I’m building up on my site for patients, as a patient who’s lived with it for more than two decades myself. This article in particular will focus on all things related to the female sex and women’s health in Antiphospholipid Syndrome. It will […]

Useful Things to Do While on Bed Rest After Surgery: Education, Advocacy & Volunteering (Part 5 of 5)

This post is part of a series on my knee surgery and recovery journey, and how I coped with all that down time. I spent a good part of a year bed bound, in pain, and also bored. Afternoons were the toughest, as it felt like a state of limbo, where the world was speeding […]

Uplifting Activities to Do While Recovering in Bed (Part 4 of 5)

This post is part of a series on my recovery journey from a spontaneous bilateral patellar tendon rupture, which left me bed bound for nearly a year. In this article, I will share some uplifting activities to do while recovering in bed. You can also find more tips, resources and fun suggestions at the end […]

Fun Things To Do While Recovering From Surgery: Hobbies, Crafts & Games (Part 3/7)

This post is part of a series where I share my recovery journey from a spontaneous bilateral patellar tendon rupture. Both my knees were broken, and I was bed bound for almost a year, with the first 6 weeks spent trying to keep my legs as flat I could so as not to incur further […]

Fun & Productive Things to Do on Digital Devices After Knee Surgery (Part 2 of 5)

Apart from the immense pain and lack of mobility, being stuck in bed after any major surgery can leave you bored to tears. I personally suffered from a spontaneous bilateral patellar tendon rupture due to Lupus, and the steroid therapy that I’m on. Being bed bound for an entire year meant that I not only […]

Top Tips for Travelling with Chronic Illness & Disability (From a Girl Who Loves to Travel)

Travelling with Chronic Illness & Disability – Why I Do It Anyway Travelling is one of my biggest passions in life, and I’d like to share my top tips for travelling with chronic illness and disability in this post. Whilst we all travel for various reasons and find pleasure in different things, being chronically ill […]