Friday, 14 August 2020. Issue #226.
In this issue: Not all disabilities are visible so don’t make assumptions. Small acts of kindness can seem like a huge act of mercy to someone who’s in pain. I can only do what I can do as a person with chronic illness, and flow through life in a different sort of way. An inclusive society only serves to benefit all parties as we thrive on diverse contributions as human beings. Always trust in your body and in your pain; don’t let anyone brush you off as it can be life-threatening. When you know that you’ve had quality time with your grandchildren, as your table is filled with glitter remnants and more. Pacing and spreading your rest time out over days are vital for preventing pain flares. Managing multiple chronic conditions can feel like herding cats as they are never in sync and are unpredictable. When chronic illness takes away your perceived identity as a fun, sporty and social person. There is no handbook that teaches you how to be a good parent whilst managing chronic illness, in relation to letting go of guilt and setting boundaries for your health.
"#Society has been brainwashed to believe that #disabled equals #wheelchair, but #disability comes in all shapes and sizes. Remember that not all disabilities are visible so try not to make assumptions": https://t.co/Pve8WJsqVH @JourneyFog
— A Chronic Voice (@AChVoice) August 7, 2020
“Small acts of #kindness can seem like HUGE acts of #mercy to a person in pain": https://t.co/WrR2i8aXsJ @JourneyFog #ChronicPain #BeKind #human
— A Chronic Voice (@AChVoice) August 11, 2020
[New Post] "I can only do what I can, and #flow in a different sort of way..Often I’ll run into muddy bogs..sometimes it’ll be like whitewater rafting & sometimes it will seem magical ard me. I’m sure in for a ride,": https://t.co/D8Nmj8MShG #MondayBlogs #ChronicIllness #spoonies
— A Chronic Voice (@AChVoice) August 10, 2020
"Increasing our mindfulness on hw to b more #inclusive can only serve to benefit the individual as well as #society at large as we thrive on diverse contributions" – #ChronicPain: How to Approach a Loved One W/o Pushing Them Away: https://t.co/KQ03WNWP4d #MondayBlogs #disabled pic.twitter.com/oWp0KJOtey
— A Chronic Voice (@AChVoice) August 10, 2020
"Trust your #body and believe in your #pain. Don’t let #doctors brush you off, and seek help immediately. Waiting for two days before going to the #EmergencyDepartment nearly cost me my life, and did permanent damage to my body": https://t.co/YpcYhZPoY8 @uninvisiblepod #spoonie pic.twitter.com/8HwzwMlSIF
— A Chronic Voice (@AChVoice) August 12, 2020
“Our new dining room table has glitter embedded into the wood grain. There's a bit of nail polish on the chair, but u know, we dont care. It's just evidence that we hv had a wonderful time tgt": https://t.co/QfEcwznsCM @klclark525 #QualityTime #grandkids #grandparents #family
— A Chronic Voice (@AChVoice) August 10, 2020
"#Pacing. Something I’m not very good at but I try my best anyway. I try to take regular #restbreaks. I also plan my activities so they’re spread out over a few days, rather than all in one day": https://t.co/9KyWDjBuL5 @JourneyFog #planning #ChronicIllness #PainManagement
— A Chronic Voice (@AChVoice) August 13, 2020
“Managing multiple #chronicconditions often feels like herding cats to me. Just as one starts to go in the right direction, the other ones start doing a merry dance the opposite way": https://t.co/rO6cFPQS77 @throughfibrofog #ChronicIllness #ChronicLife #spoonies #ChronicallyIll
— A Chronic Voice (@AChVoice) August 8, 2020
“I could no longer define myself through being sporty and active; I could no longer define myself through partying hard. I was no longer the fun, loud and outgoing Kathryn”: https://t.co/cyx7ypZ88c @ChronicalillKat #YoungAdult #youth #SelfIdentity #spoonie #ChronicIllness
— A Chronic Voice (@AChVoice) August 11, 2020
“No one teaches us how to let go #guilt, maintain boundaries, or how to interact with our #kids while preserving our #health": https://t.co/sSsM0XJEAV @chronicmom1 #ChronicIllness #parenting
— A Chronic Voice (@AChVoice) August 8, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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