Friday, 28 August 2020. Issue #228.
In this issue: Simply being there for someone in pain can mean the world to them. Expanding the Chronic Illness Social Pod together as a team. Twitter can be great for advocacy issues, and it can be encouraging to see chronic illnesses recognised and campaigned for. Positivity can become toxic when we live in denial, and can be worse when others choose to ignore problems using it. Life goals can be fickle and difficult to achieve as a person with chronic illness, as we try to reach out for them on those rare good days. One of the top articles on the blog is about Antiphospholipid Syndrome surprisingly, which I presume is because there is precious little experiences shared about it out there. Whilst we may not have medical degrees as patients, we have the right to understand what our treatments do. How to drink more water as dehydration can lead to many health problems such as gout, constipation, back pain and more. When you live with chronic illness there is always a constant level of pain there, sometimes til the point where we don’t notice it anymore. Self compassion is the root of self-care, as it focuses on self-awareness and wanting to improve things.
"How many times have you, as a #friend or #caregiver, felt helpless seeing your loved one in pain?…..Know that simply being there for a loved one who’s #suffering can mean the world to them": https://t.co/QPNDW3ULyN #BeThere #ChronicPain
— A Chronic Voice (@AChVoice) August 21, 2020
"I will expand them..once we all get the hang of it, and once we gain enough traction with the current threads. Let’s ease into it together, and work as a team": https://t.co/1uVoevSlhb #StrongerTogether #spoonies #SupportGroup #ChronicLife #MentalHealth
— A Chronic Voice (@AChVoice) August 24, 2020
“While I’m not the biggest tweeter, I find #Twitter to be really good for #advocacy issues..It’s great to see that level of recognition for #chronicillness issues & how so many get behind the call for..campaigns": https://t.co/HRLOzgKSPa @throughfibrofog #spoonies #community
— A Chronic Voice (@AChVoice) August 24, 2020
"To clarify, I hate unicorn rainbow #thinking that ignores root causes, covering #problems up rather than dealing w them..It’s worse when..people use it as a 'I don’t want to hear anymore of yr boring topic, let’s end it' catch-all phrase": https://t.co/oJQKvum30L #ChronicIllness
— A Chronic Voice (@AChVoice) August 24, 2020
"#LifeGoals aren’t just something you reach out to pluck; they’re more like twinkling stars you try and reach out for during a rare good period. These good periods come and go like finicky toddlers": https://t.co/oLJnOji4JL #pacing #ChronicLife #SpoonieProblems #SelfCare
— A Chronic Voice (@AChVoice) August 23, 2020
"It’s one of the top five articles on my #blog, strangely. I am assuming it’s because it’s such a #raredisease, and there’s so little information out there about it": https://t.co/6v5YnX6wx6 @chroniceileen #AntiphospholidSyndrome #APS #ChronicIllness
— A Chronic Voice (@AChVoice) August 26, 2020
“We may not have a #medical degree. But we have a right – and an obligation to ourselves – to fully understand tests and #treatments so that we can make informed decisions": https://t.co/oUwTHnPvzc #doctors #PatientCare #healthcare
— A Chronic Voice (@AChVoice) August 24, 2020
"#Dehydration – the lack of #water – can cause and contribute to #health issues, such as arthritis, gout, headaches, constipation, back pain, and kidney problems": https://t.co/rzgaFL8Sh2 @notebksglasses #HealthAndWellness #DrinkMoreWater
— A Chronic Voice (@AChVoice) August 27, 2020
“Even those who live with us forget that we are always in #pain..There is always some level of pain, the best we can do is learn to focus on something else and not think about it": https://t.co/QiBYaGpR5y @drunkitty2000 #ChronicPain #awareness #ChronicIllness #ChronicLife
— A Chronic Voice (@AChVoice) August 25, 2020
“#SelfCompassion is being aware of one's current conditions & wanting to make things better; this is the root of #selfcare. However, #selfcherishing is when u take it 1 step further & u make yrslf precious & separate fr others": https://t.co/HIJlRpXiUm @perpetuaneo #SelfSoothing
— A Chronic Voice (@AChVoice) August 23, 2020
*Note: This article is meant for educational purposes, and is based on each person’s individual experiences and circumstances. It is not to be substituted for medical advice. Please consult your own doctor before changing or adding new treatment protocols.
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