August 2018 Prompts: Figuring, Completing, Boring, Cuddling & Chatting | www.achronicvoice.com

CLICK HERE to submit your own entry, and to read about what others are up to as well! Figuring out some new symptoms again. To be a person with chronic illness is to be an enigma. The need to deal with a constant stream of puzzles arises, mysteries that you either solve or live with. […]

August 2018 Linkup Party for People with Chronic Illnesses | achronicvoice.com | #achronicvoice #august #linkup #prompts #chronicillness #spoonie

So we’re more than halfway through the year already (!!), yet life with chronic illness is both mundane and unpredictable. August brings new cards to the gambling table of my life, which I’ll have to consider and play. Has there been any disruptions to your usual routine, for better or for worse? I and many […]

Issue 116: How Everything in Life Alters in Meaning with Chronic Pain & How Pets Can be Great Therapy | www.achronicvoice.com

Friday, 29 June 2018. Issue #116. In this issue: The sad misconceptions surrounding the ‘right’ to use a disabled parking spot. Songs that comfort in a myriad of ways. Some favourite things and moments in June, and the struggle with beauty regimes. The one phrase that makes your pain feel invalidated. Chronic illness is a […]

What’s it Like to be the Father of a Sick Child? (Precious Insights from My Own Dad!) | www.achronicvoice.com

If there’s one passion that my father passed on to me, it would be travelling. More of the rugged, far out type of places, rather than posh retreats. As you will see in this interview, his best memories are all travel-related as a family. And if you’ve read the interview with my mum for Mother’s […]

Flowers are the Most Beautiful When They're Just About to Die (and What That's Got to Do with Being a Spoonie) | www.achronicvoice.com

A Surprising Thought During a Floral Workshop Recently, I attended a floral workshop as part of a good friend’s hen’s party. Such classes aren’t that cheap, so in a way I was glad to finally have an ‘excuse’ to go for one without feeling guilty 😉 (P.s. I understand why they’re charged at those rates, […]

You Don't Have to be Strong, You Just Have to be a Little Stronger Than Before | www.achronicvoice.com

*Note: This post was first published on prohealth.com, and is republished here with permission from the editors. When Inspiration Becomes the Standard We often tell ourselves or others to ‘be strong’ or to ‘be brave’. Instead of instilling inspiration, these statements can sometimes provoke the opposite effect. It becomes another standard we have to meet, […]

Issue #109: The Problem with the Word 'Tired' & the Importance of Being Your Own Health Advocate. Click to read or pin to save for later. | www.achronicvoice.com | #achronicvoice #spoonies #healthnews #tophealthtweets #chronicillness #healthcare #healthandwellness

Saturday, 12 May 2018. Issue #109. In this issue: Many spoonies manage to hide their pains really well, to the point where we can’t even identify each other! The importance of being your own biggest health advocate, and holding onto hope. Showing gratitude to our mothers, who never fail to show up despite feelings or […]

What I Thought About the Award-Winning Film, “Unrest” (vs My Healthy Movie Night Companions!) | www.achronicvoice.com

Who is Jennifer Brea, and What is “Unrest” About? Jennifer Brea was a Ph.D. student at Harvard, when she was struck down by a mysterious illness. This is a documentary of both her and her husband’s journey, living with this nightmare of a disease called ME/CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome). She approached me […]