A health, wellness and chronic illness blog that aims to articulate lifelong illness and disabilities from various perspectives.
In a previous post, I mentioned how everyone’s rest requirements can be different. A healthy person’s body is able to handle a bigger blow of stress, and recover with less consequences. People with chronic illnesses on the other hand, learn to pay constant attention to the state of their body. If there is one thing […]
This poem was written during the peak of my struggles with steroids as a teenager, when I was first prescribed them. If you would like to understand a little more about the side effects and how they affected me, the article can be found here: High Dose Steroids: The First Question You Will Definitely Ask. […]
Continue reading "It’s Just One of Those Nights (Poetry on Steroids)"
*Note from A Chronic Voice: Jeremy and Joanna are both physiotherapists who have been travelling around the world since 2010, working in all sorts of interesting places! They are committed to staying as healthy as possible while on the road. Today Jeremy shares some basic insight into back pain from a physiotherapist’s perspective, and also […]
Continue reading "Back Pain Blues? A Physiotherapist Shares Some Tips."
*Note from A Chronic Voice: Lucy first interviewed me for her blog, which inspired me to conduct a couple of them myself. My hope is to expand this blog to include many other voices other than my own. Every life story is unique, and the way we experience it is also very different. While Lucy […]
Continue reading "Talking Thyroid with Lucy of “The Thyroid Damsel”"
Welcome to Adult Life I entered my adult years in turmoil no thanks to Lupus. At 20 I developed epilepsy, then leukopenia, crippling arthritis pains and endometrial polyps in the years to follow. Some of these were a direct result of my illnesses, and others were side effects of medications taken to control them. I […]
Continue reading "An Anaphylaxis Reaction from Rituximab in Between Shady Years"
Many chronic conditions are often overlooked because they don’t sound that painful or difficult to deal with. The person may even look well! Are they just craving attention, being lazy or faking it? Before experiencing these symptoms for myself, I too, have been guilty of ignorant and unkind thoughts within the privacy of my mind. […]
Continue reading "3 Types of Chronic Pain that Sound Bearable, but are Not"
Note: This describes what it’s like when I get inflammatory lumps on my body, especially around my chest area. They pop up without warning, and subside anywhere from within a night to weeks. They sometimes hurt bad enough that I need painkillers just to breathe normally. This is also my first attempt at writing a […]
The Calm Before the Storm The three year ‘break’ after the multiple blood clots disaster, was just the calm before the storm. A little breather before the heavy duty fighting that was to come. The death of life as I knew it, and the personality I thought was mine twisted by the hands of fate. […]
A thought-provoking excerpt from a book I was reading, which I find very applicable here: “Metaphor is the currency of knowledge. I have spent my life learning incredible amounts of disparate, disconnected, obscure, useless pieces of knowledge, and they have turned out to be, almost all of them, extremely useful. Why. Because there is no […]
Continue reading "It is Hard to Imagine Being Chronically Ill, But Here are 5 Metaphors"
So your friend with a chronic illness has rejected your party invitation…again. Or they’ve included a list of T&Cs just in case they have to bail last minute. What’s up with that? Do they hate you or something? I booked a champagne brunch the other day for the boy’s birthday and thought, why not use […]
Continue reading "We Want to Have Fun Just Like You, But Here’s What it Takes"